title: Compliance with the medical regimen and partner's quality of life after heart transplantation.
abstract: The authors investigated 40 heart transplant recipients and their partners to determine both the partner's quality of life upon transplantation and the experiences of both patient and partner with compliance with the medical regimen. Data on sleep disturbances, social isolation, emotional reactions, depression, anxiety, partner's apprehension, social support and compliance (regarding behaviour and emotional experience) were obtained approximately 21 months after transplantation. Compared to related study groups, partners did not experience more problems in sleep, social isolation, emotional reactions, depression and anxiety. Patients overestimated the apprehension of their partners significantly (p < 0.0001). Generally speaking, with the exception of three items relating to eating fish, canned food and forgetfulness in medicine intake, patients and partners agreed with respect to actual compliance behaviour. Lowest compliance concerned regular physical exercise: 28%. Both patient and partner insisted that they had scarcely any emotional problem with the regimen. Further systematic research is needed to bring to light factors that affect compliance as well as adequate methods to bring about an improvement therein.
authors.affiliation: University Hospital Rotterdam-Dijkzigt, Thoraxcentre, The Netherlands.
authors.forename: R A
authors.initials: RA
authors.lastname: Erdman
authors.forename: L
authors.initials: L
authors.lastname: Horstman
authors.forename: R T
authors.initials: RT
authors.lastname: van Domburg
authors.forename: K
authors.initials: K
authors.lastname: Meeter
authors.forename: A H
authors.initials: AH
authors.lastname: Balk
mesh_terms: D000328:Adult; D001007:Anxiety / Q000453:epidemiology; D017028:Caregivers / Q000523:psychology*; D003863:Depression / Q000453:epidemiology; D004032:Diet; D005260:Female; D016027:Heart Transplantation / Q000523:psychology*; D006801:Humans; D008297:Male; D008393:Marriage / Q000523:psychology*; D008568:Memory; D008875:Middle Aged; D010349:Patient Compliance; D011788:Quality of Life; D012893:Sleep Wake Disorders / Q000453:epidemiology; D012934:Social Isolation; D012944:Social Support; D011795:Surveys and Questionnaires