Survival of profoundly disabled people with severe mental retardation.
OBJECTIVE
To define further the association between survival and clinical disabilities in profoundly disabled people with mental retardation in an 11-year period.


METHODS
An 11-year follow-up study of the survival of six mutually exclusive subgroups. The presence of severe, profound, or suspected mental retardation and incontinence were considered in all individuals when forming the subgroups. Varying combinations of abilities in mobility, rolling, feeding, and arm-hand use were also considered.


METHODS
Six subgroups of severely disabled subjects. Included were 128,248 of 155,851 persons who received services from the California Department of Developmental Services between January 1980 and March 1991.


RESULTS
Survival estimates for individuals who were immobile and could not roll over were short regardless of arm-hand use or feeding status, as were estimates for people who were tube fed. For individuals who could roll over, but were otherwise immobile, survival was relatively improved.


CONCLUSIONS
Individuals who are unable to move their extremities or bodies voluntarily or who require tube feeding have very shortened life expectancies.
Eyman
R K
RK
School of Education, University of California, Riverside 92521-0128.
Grossman
H J
HJ
Chaney
R H
RH
Call
T L
TL
D000203:Activities of Daily Living; D000293:Adolescent; D000328:Adult; D000368:Aged; D002140:California / Q000453:epidemiology; D002648:Child; D002675:Child, Preschool; D015897:Comorbidity; D006233:Persons with Disabilities / Q000706:statistics & numerical data*; D004750:Enteral Nutrition / Q000706:statistics & numerical data; D005006:Ethnicity; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008607:Intellectual Disability / Q000150:complications / Q000401:mortality* / Q000503:physiopathology; D008297:Male; D008875:Middle Aged; D012111:Residence Characteristics; D012720:Severity of Illness Index; D016019:Survival Analysis; D015996:Survival Rate