Parents' views of community care for children with motor disabilities.
In this study we have ascertained the views of 40 parents of 4-year-old children with motor disabilities, on the health and education services, social service and the availability of respite care. The children with moderate or severe motor disability who were born in 1985, were identified from the Oxford Regional Register of Early Childhood Impairment. Thirty-three (83%) completed a questionnaire taken to the home by the health visitor. Although most parents had access to a range of services, lack of information in the early years, fragmentation of services and limited choices were identified as problems. Parents regarded the breadth of care provided by the pre-school teacher counsellor and the nursery school as very useful, whereas the health service and social services were perceived as less appropriate. This small study suggests that for some families, the objectives of community care as identified in the Griffiths Report (Griffiths 1988) and reiterated in the Children Act (1989) are not yet being met.
Oxford Region Register of Early Childhood Impairments, John Radcliffe Maternity Hospital, Headington, UK.
C L
CL
Haylock
M A
MA
Johnson
V A
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Harpin
D000328:Adult; D002547:Cerebral Palsy; D002656:Child Day Care Centers / Q000592:standards; D002669:Child Welfare; D002675:Child, Preschool; D003153:Community Health Services; D003695:Delivery of Health Care; D006233:Persons with Disabilities / Q000193:education; D005260:Female; D006297:Health Services Accessibility; D006801:Humans; D008297:Male; D009048:Motor Skills; D010290:Parents; D011795:Surveys and Questionnaires; D006113:United Kingdom