Differences in pain knowledge and perception of the pain experience between outpatients with cancer and their family caregivers.
OBJECTIVE
To determine if knowledge about pain and the perception of the pain experience differ when comparing outpatients experiencing cancer-related pain with their family caregivers.


METHODS
Quantitative, descriptive.


METHODS
Sixteen oncology outpatient settings that are part of the Oncology Nursing Research Network.


METHODS
Eighty-six outpatients with cancer-related pain and their family caregivers.


METHODS
Patients and their family caregivers were recruited in the outpatient setting and asked to complete a demographic questionnaire and the Pain Experience Scale. The patients also were asked to complete the Karnofsky Performance Scale.


METHODS
Patients' and their family caregivers' knowledge about pain and their perception of the pain experience.


RESULTS
No significant differences in knowledge scores were found between the patients and their family caregivers. A significant difference in the perception of the pain experience was found, with the family caregivers viewing the experience more negatively than the patients did. Family caregivers reported that (a) patients had significantly higher levels of pain compared to patient reports, (b) patients experienced significantly greater distress from their pain than the patients reported for themselves, and (c) family caregivers experienced significantly greater distress from the patients' pain than the patients reported for their caregiver.


CONCLUSIONS
Outpatients with cancer and their family caregivers possess limited knowledge about pain and pain management and perceive the pain experience differently.


CONCLUSIONS
Outpatients and their family caregivers need to be better educated about how to manage cancer-related pain. In addition, to reduce patient and caregiver distress, oncology nurses need to facilitate communication between patients and family caregivers about the pain experience.
Nell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA, USA.
K A
KA
Yeager
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Miaskowski
S L
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Dibble
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Wallhagen
D017028:Caregivers; D016009:Chi-Square Distribution; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000150:complications* / Q000451:nursing; D010045:Outpatients; D010146:Pain / Q000209:etiology / Q000451:nursing* / Q000503:physiopathology / Q000523:psychology; D010147:Pain Measurement; D010347:Patient Care Planning; D010353:Patient Education as Topic