Home care for children dependent on medical technology: the family perspective.
Children who are dependent on medical technology present unique challenges to families and professionals who attempt to care for them at home. This longitudinal, exploratory study examines the placement threatening crises experienced over an eighteen-month period by four such families in Minnesota. The findings encourage development of a family support model of placement prevention for this population, as opposed to a crisis intervention model.
Petr
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Murdock
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Chapin
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D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D001925:Brain Damage, Chronic / Q000534:rehabilitation; D017028:Caregivers / Q000523:psychology; D019090:Case Management; D002648:Child; D002662:Child Health Services / Q000458:organization & administration*; D002675:Child, Preschool; D002908:Chronic Disease; D004750:Enteral Nutrition; D005260:Female; D017144:Focus Groups; D006282:Health Personnel / Q000193:education; D006301:Health Services Needs and Demand; D006701:Home Nursing / Q000458:organization & administration*; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D007318:Inservice Training; D008607:Intellectual Disability / Q000534:rehabilitation; D008137:Longitudinal Studies; D008171:Lung Diseases / Q000534:rehabilitation; D008297:Male; D008483:Medical Assistance; D013677:Medical Laboratory Science; D008910:Minnesota; D014139:Tracheostomy