title: [Psychological aspects of Prader-Willi syndrome. Results of a parent survey].
abstract: Forty-six parents of children and adolescents with Prader-Willi syndrome reported on the social and emotional behavior of their children and on parenting stress. Standardized questionnaires were used, e.g. a German behavioral questionnaire for preschool children and the Child Behavior Checklist. The results showed a high frequency of problem behaviors, including stubbornness, temper tantrums, obsessions and underactivity. In comparison to age norms, 40% of the preschool children were socially immature and 20% had social adaptation problems. Among the school-age children 70% had social adaptation problems. More than 70% of the mothers reported a high level of parenting stress and are in need of psychological counseling.
authors.affiliation: Kinderzentrum München.
authors.forename: K
authors.initials: K
authors.lastname: Sarimski
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D002648:Child; D002653:Child Behavior Disorders / Q000175:diagnosis / Q000523:psychology*; D002675:Child, Preschool; D017281:Cost of Illness; D005260:Female; D006801:Humans; D008297:Male; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D010552:Personality Assessment; D010553:Personality Development; D011218:Prader-Willi Syndrome / Q000523:psychology*; D012803:Sick Role
vernacular_title: Psychologische Aspekte des Prader-Willi-Syndroms. Ergebnisse einer Elternbefragung.