title: [QOL and nursing care of a ventilator-assisted child at home].
abstract: QOL is the important issue for chronically ill children. We visited a girl, 8 years old and 24 hours dependent on a ventilator. We talked to her, and observed her daily life, mainly on the following points: (1) what she is doing; and (2) how often, and what kind of care she needs at school and at home. Then we discussed the problems, QOL and nursing care. She enjoyed her school life with her many friends, and received respiratory care, sanitary care, and other care for 11 hours and 19 minutes in average per day. 93.1% of the care was taken by her parents and volunteer care givers, so that they wanted to have nurses care for her. Many kinds of nursing care service were necessary as soon as possible.
authors.affiliation: Department of Home Care, Tokyo Metropolitan Neurological Hospital, Japan.
authors.forename: N
authors.initials: N
authors.lastname: Kondo
authors.forename: A
authors.initials: A
authors.lastname: Ogura
authors.forename: S
authors.initials: S
authors.lastname: Kawamura
authors.forename: S
authors.initials: S
authors.lastname: Tokuyama
authors.forename: I
authors.initials: I
authors.lastname: Miyawaki
authors.forename: N
authors.initials: N
authors.lastname: Konishi
authors.forename: T
authors.initials: T
authors.lastname: Nagasawa
authors.forename: K
authors.initials: K
authors.lastname: Ezawa
authors.forename: F
authors.initials: F
authors.lastname: Wako
mesh_terms: D002648:Child; D005260:Female; D006699:Home Care Services; D006701:Home Nursing; D006801:Humans; D011788:Quality of Life; D012122:Ventilators, Mechanical