[Psychosocial problems in Huntington chorea. 1: Overview, project description. social and illness-related data].
Huntington's Disease, a neuropsychiatric disorder with dominant inheritance and late manifestation is related to multiple psychosocial problems of the affected person, his life partner as well as their children (so-called individuals at risk). During a five years project the authors contacted 131 persons, directly and indirectly involved in problems with H.D. In the first part the authors present after a general survey sociodemographic and clinical data of the project.
Jarka
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Brosig
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Richter
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D000203:Activities of Daily Living / Q000523:psychology; D000223:Adaptation, Psychological; D000328:Adult; D002648:Child; D017281:Cost of Illness; D005260:Female; D006801:Humans; D006816:Huntington Disease / Q000453:epidemiology / Q000235:genetics / Q000523:psychology*; D008297:Male; D008875:Middle Aged; D012657:Self-Help Groups; D012803:Sick Role
Psychosoziale Probleme bei Huntingtonscher Chorea. Teil 1: Ubersicht, Projektbeschreibung, soziale und krankheitsbezogene Daten.