title: Allocating health care: cost-utility analysis, informed democratic decision making, or the veil of ignorance?
abstract: Assuming that rationing health care is unavoidable, and that it requires moral reasoning, how should we allocate limited health care resources? This question is difficult because our pluralistic, liberal society has no consensus on a conception of distributive justice. In this article I focus on an alternative: Who shall decide how to ration health care, and how shall this be done to respect autonomy, pluralism, liberalism, and fairness? I explore three processes for making rationing decisions: cost-utility analysis, informed democratic decision making, and applications of the veil of ignorance. I evaluate these processes as examples of procedural justice, assuming that there is no outcome considered the most just. I use consent as a criterion to judge competing processes so that rationing decisions are, to some extent, self-imposed. I also examine the processes' feasibility in our current health care system. Cost-utility analysis does not meet criteria for actual or presumed consent, even if costs and health-related utility could be measured perfectly. Existing structures of government cannot creditably assimilate the information required for sound rationing decisions, and grassroots efforts are not representative. Applications of the veil of ignorance are more useful for identifying principles relevant to health care rationing than for making concrete rationing decisions. I outline a process of decision making, specifically for health care, that relies on substantive, selected representation, respects pluralism, liberalism, and deliberative democracy, and could be implemented at the community or organizational level.
authors.affiliation: University of Michigan, USA.
authors.forename: S D
authors.initials: SD
authors.lastname: Goold
mesh_terms: D026683:Advisory Committees; D032802:Committee Membership; D003256:Community Participation; D003362:Cost-Benefit Analysis; D018864:Cultural Diversity; D003709:Democracy; D028663:Ethical Theory; D015276:Health Care Rationing / Q000331:legislation & jurisprudence*; D018166:Health Care Reform / Q000191:economics*; D017146:Models, Organizational; D018579:Patient Selection; D026684:Personal Autonomy; D011050:Policy Making; D011639:Public Opinion; D019057:Quality-Adjusted Life Years; D040841:Resource Allocation; D018570:Risk Assessment; D012935:Social Justice; D012941:Social Responsibility; D012945:Social Values; D014481:United States; D035862:Vulnerable Populations