title: Decision making for the critically ill neonate near the end of life.
abstract: Our purpose was to review the medical records of 122 infants who died in our neonatal intensive care unit (NICU) to characterize decision making for the critically ill neonate near the end of life. The majority of deaths (72%) were related to some complication of prematurity. Families participated in the decision-making process in 75% of the instances. A decision was made to limit, withdraw, or withhold life-sustaining treatment for 82% of the infants. At the time of decision making, prognosis was judged to be poor or hopeless and the burdens of treatment unacceptable for 90% of the infants. This study confirms that health care providers and families together can confront the ethical decision of whether to continue or forego life-sustaining treatment for the critically ill neonate near the end of life and, in the majority of cases, will choose to limit, withdraw, or withhold such support.
authors.affiliation: Department of Pediatrics, Magee-Womens Hospital, University of Pittsburgh School of Medicine, PA 15213-3180, USA.
authors.forename: L A
authors.initials: LA
authors.lastname: Cook
authors.forename: J F
authors.initials: JF
authors.lastname: Watchko
mesh_terms: D016638:Critical Illness; D003657:Decision Making; D006801:Humans; D007231:Infant, Newborn; D007232:Infant, Newborn, Diseases; D007363:Intensive Care Units, Neonatal; D008020:Life Support Care; D018579:Patient Selection; D016414:Resuscitation Orders; D013727:Terminal Care; D028761:Withholding Treatment