Ethics, genomics, and information retrieval.
The union of genomics and computational information retrieval raises a number of ethical issues, including data sharing, database accuracy, group and subgroup stigma, and privacy and confidentiality. These issues are introduced and assigned a preliminary analysis which, it is hoped, may be of use in more sustained efforts to identify issues, solutions and potential guidelines, to stimulate education, and to strike the most appropriate balance between the rights of individuals and the needs of researchers and society.
Goodman
K W
KW
Forum for Bioethics and Philosophy, University of Miami, FL 33101, USA.
D016494:Computer Security; D003219:Confidentiality; D030561:Databases, Nucleic Acid; D004992:Ethics, Medical; D015723:Gene Library; D030661:Genetic Privacy; D036281:Genetic Research; D016045:Human Genome Project; D006801:Humans; D033181:Information Dissemination; D016247:Information Storage and Retrieval; D011287:Prejudice; D015203:Reproducibility of Results; D035842:Research Subjects