title: Care-giver evaluation of anti-gastroesophageal reflux procedures in neurologically impaired children: what is the real-life outcome?
abstract: Although the pediatric surgical literature is replete with reports of the success of operations for gastroesophageal reflux, postoperative complications are being reported with increasing frequency for the neurologically impaired subpopulation. Because a large portion of a care-giver's life is involved in attending to a neurologically impaired child, parental satisfaction with the outcome of these operations should be an important consideration when the use of such procedures is contemplated. The purpose of the present study was to assess the impact of antireflux operations with respect to care-giver opinions regarding the procedure. The authors retrospectively reviewed 25 charts (of 13 girls and 12 boys; age range, 3 months to 18 years) and documented (through survey results) perceived child well-being, objective care requirements, and overall care-giver satisfaction with the procedure. Results indicate there was significant improvement in feeding indexes, care-giver perception of the child's comfort, and quality of life postoperatively. Moreover, there was significant improvement in the care-givers' attitudes regarding their child, including the level of frustration in caring for the child, and the parents' overall quality of life. Care-givers also believed that the operation's result was about or better than what they had expected. In conclusion, the study documents care-giver satisfaction with antireflux procedures. Postoperatively, child care is easier and the quality of time spent with the child is better. The impression of better quality of life postoperatively for a neurologically impaired child may be the greatest success in this sometimes frustrating endeavor.
authors.affiliation: Department of Pediatrics and Human Development, Michigan State University, East Lansing, USA.
authors.forename: J K
authors.initials: JK
authors.lastname: O'Neill
authors.forename: P J
authors.initials: PJ
authors.lastname: O'Neill
authors.forename: T
authors.initials: T
authors.lastname: Goth-Owens
authors.forename: B
authors.initials: B
authors.lastname: Horn
authors.forename: L M
authors.initials: LM
authors.lastname: Cobb
mesh_terms: D000293:Adolescent; D017028:Caregivers / Q000523:psychology*; D002648:Child; D002675:Child, Preschool; D005260:Female; D018662:Fundoplication / Q000009:adverse effects / Q000523:psychology*; D005764:Gastroesophageal Reflux / Q000601:surgery*; D006801:Humans; D007223:Infant; D007902:Length of Stay; D008297:Male; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D017060:Patient Satisfaction; D011788:Quality of Life; D012189:Retrospective Studies; D013315:Stress, Psychological / Q000523:psychology; D011795:Surveys and Questionnaires; D016896:Treatment Outcome