title: Cost of care of patients with cystic fibrosis in The Netherlands in 1990-1.
abstract: BACKGROUND
  Research on the cost of care of patients with cystic fibrosis is scarce. The aim of this study was to estimate the costs using age-specific medical consumption from real patient data.
  
  
  METHODS
  The age-specific medical consumption of patients with cystic fibrosis in The Netherlands in 1991 was estimated from a survey of medical records and a patient questionnaire. A distinction was made between costs of hospital care, hospital and non-hospital medication, and home care. Costs per year were obtained by multiplying the yearly amount of care and the costs per unit.
  
  
  RESULTS
  On average the annual cost of a patient with cystic fibrosis in 1991 was 10,908 pounds (hospital care 42%, medication 37%, home care 20%). The cost of care of cystic fibrosis in The Netherlands, with approximately 1000 patients, is estimated at 10.9 million pounds per year, which is 0.07% of the total health care budget. The cost of care of a patient up to the age of 35 is estimated at 614,587 pounds. When year-to-year survival is taken into account and future costs are discounted to the year of birth with a yearly discount rate of 5%, the cost of care of a patient with cystic fibrosis is estimated at 164,365 pounds for 1991. This estimate will be used in a prospective evaluation of screening for cystic fibrosis carriers.
  
  
  CONCLUSIONS
  The cost of care of patients with cystic fibrosis estimated by age-specific medical consumption of real patients is higher than that estimated by non-age-specific medical consumption and/or expert opinions.
authors.affiliation: Department of Public Health, Erasmus University, Rotterdam, The Netherlands.
authors.forename: M F
authors.initials: MF
authors.lastname: Wildhagen
authors.forename: J B
authors.initials: JB
authors.lastname: Verheij
authors.forename: J G
authors.initials: JG
authors.lastname: Verzijl
authors.forename: H B
authors.initials: HB
authors.lastname: Hilderink
authors.forename: L
authors.initials: L
authors.lastname: Kooij
authors.forename: T
authors.initials: T
authors.lastname: Tijmstra
authors.forename: L P
authors.initials: LP
authors.lastname: ten Kate
authors.forename: J
authors.initials: J
authors.lastname: Gerritsen
authors.forename: W
authors.initials: W
authors.lastname: Bakker
authors.forename: J D
authors.initials: JD
authors.lastname: Habbema
authors.forename: F
authors.initials: F
authors.lastname: Habbema
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D002675:Child, Preschool; D017281:Cost of Illness; D003550:Cystic Fibrosis / Q000191:economics* / Q000628:therapy*; D017048:Health Care Costs; D006699:Home Care Services / Q000191:economics; D006760:Hospitalization / Q000191:economics; D006801:Humans; D007223:Infant; D009426:Netherlands; D010342:Patient Acceptance of Health Care; D026741:Physical Therapy Modalities / Q000191:economics