Information needs of cancer patients in west Scotland: cross sectional survey of patients' views.
OBJECTIVE
To assess the needs of patients with cancer for information about their condition.


METHODS
Cross sectional survey of patients' views by means of semistructured interview with questionnaire.


METHODS
A regional cancer centre and two university hospitals in west Scotland.


METHODS
250 (93%) of 269 cancer patients invited to participate in study who were selected by age, sex, socioeconomic status, and tumour site to be representative of cancer patients in west Scotland.


METHODS
Patients' need to know whether they had cancer, the medical name of their illness, progress through treatment, how treatment works, side effects, chances of cure, and treatment options.


RESULTS
79% (95% confidence interval 73% to 84%) of patients wanted as much information as possible, and 96% (93% to 98%) had a need or an absolute need to know if they had cancer. Most patients also wanted to know the chance of cure (91% (87% to 94%)) and about side effects of treatment (94% (90% to 97%)). When the replies were cross tabulated with patients' age, sex, deprivation score, and type of treatment there was a linear trend for patients from more affluent areas to want more information and those from deprived areas to want less. There was a strong preference for diagnosis of cancer to be given by a hospital doctor (60% (53% to 66%).


CONCLUSIONS
Almost all patients wanted to know their diagnosis, and most wanted to know about prognosis, treatment options, and side effects.
Meredith
C
C
Faculty of Health, Glasgow Caledonian University.
Symonds
P
P
Webster
L
L
Lamont
D
D
Pyper
E
E
Gillis
C R
CR
Fallowfield
L
L
D000293:Adolescent; D000328:Adult; D000368:Aged; D001294:Attitude to Health; D003142:Communication; D003430:Cross-Sectional Studies; D005260:Female; D006306:Health Surveys; D006801:Humans; D007255:Information Services; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology*; D018570:Risk Assessment; D012606:Scotland; D014342:Truth Disclosure