title: Educational needs of stroke survivors and their family members, as perceived by themselves and by health professionals.
abstract: This study identified informational needs of stroke survivors and their family members as perceived by themselves and by health professionals. The source of information, and the desired source for future information were also explored. Green's Precede-Proceed model was used as a theoretical framework. In the study 35 stroke survivors, 39 family members and 43 health professionals participated. The results show that stroke survivors and family members indicated to desire the most information regarding reducing the chance of a new stroke. Stroke survivors rated as the major gaps of information: reducing the chance of a new stroke and coping with stress. Family members rated as the major gaps of information: sources to apply for help; strategies to perform activities of daily living, and reducing the chance of a new stroke. Stroke survivors and their family members expressed as the most desired source of information the doctor in the hospital. Health professionals expressed a high level of concern about the amount of information stroke survivors and family members receive; they expressed a substantial need for information about all topics for both groups, which should be provided by several sources. Some needs are recognized, but in most cases not met. Family members of stroke survivors who suffered more than one stroke seem to have received more information--and to desire less. Both highly educated stroke survivors and family members indicate to have received less information and desire more information than lower educated respondents.
authors.forename: H
authors.initials: H
authors.lastname: van Veenendaal
authors.forename: D R
authors.initials: DR
authors.lastname: Grinspun
authors.forename: H P
authors.initials: HP
authors.lastname: Adriaanse
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001291:Attitude of Health Personnel; D002561:Cerebrovascular Disorders / Q000523:psychology* / Q000534:rehabilitation; D004522:Educational Status; D005190:Family / Q000523:psychology*; D006301:Health Services Needs and Demand; D006801:Humans; D008875:Middle Aged; D010353:Patient Education as Topic; D011795:Surveys and Questionnaires; D017741:Survivors / Q000523:psychology*