The right not to know--worthy of preservation any longer? An ethical perspective.
A presumed right not to know has been claimed in several discussions about testing for genetic diseases or genetic risks in families of populations. In this paper, ethical problems arising from the implementation of a possible right not to know are examined.
Austad
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Norwegian Lutheran School of Theology, Oslo, Norway.
D001294:Attitude to Health; D016265:Conflict of Interest; D030881:Disclosure; D004992:Ethics, Medical; D005192:Family Health; D030342:Genetic Diseases, Inborn / Q000235:genetics / Q000523:psychology; D030661:Genetic Privacy; D036281:Genetic Research; D006806:Human Rights; D006801:Humans; D028681:Moral Obligations; D026684:Personal Autonomy; D028743:Professional Misconduct; D012306:Risk; D014342:Truth Disclosure