title: Advocacy in disability policy: parents and consumers as advocates.
abstract: Advocacy for change, which stems from commitment and vision, should be a collaborative process among parents and consumers in partnership with professionals. Using surveys, interactive focus groups, and telephone interviews, we explored the concept and activities of advocacy experienced by parents and individuals with disabilities. Participants were identified through an advocacy and leadership training program, Partners in Policymaking. Advocacy activities and supports and barriers to successful advocacy both for parents and consumers were identified. Suggestions for further research and action were proposed.
authors.affiliation: Department of Human Development and Family Studies, Iowa State University, Ames 50011, USA.
authors.forename: R
authors.initials: R
authors.lastname: Cunconan-Lahr
authors.forename: M J
authors.initials: MJ
authors.lastname: Brotherson
mesh_terms: D000328:Adult; D002648:Child; D003254:Consumer Advocacy; D005260:Female; D006291:Health Policy; D006801:Humans; D008607:Intellectual Disability / Q000534:rehabilitation*; D007484:Iowa; D007857:Leadership; D008297:Male; D010290:Parents / Q000193:education*; D010344:Patient Advocacy; D011209:Power, Psychological; D012944:Social Support