Parents' resources and home management of the care of chronically ill infants.
OBJECTIVE
To identify resources of parents or primary caretakers who managed chronically ill infants at home and to determine psychometric properties of Home Care Resources Inventory (HCRI).


METHODS
Cross-sectional, descriptive


METHODS
Outpatient clinics.


METHODS
Parents or primary caretakers (N = 100) of chronically ill infants who were discharged from hospital at least one week; 93% of sample were mothers; infants' ages ranged from 1-22 months.


METHODS
HCRI, the Spielberger State Anxiety Inventory, and a demographic questionnaire.


RESULTS
Parents reported strong resources in the area of support and inconsistent resources in areas of coping, time, and respite. The HCRI has acceptable psychometric properties.


CONCLUSIONS
Identifying resources, especially personal time and respite, is essential for successful home management of chronically ill infants. The HCRI can be used to pinpoint areas that are strong or weak in the two resource areas measured.
Sterling
Y M
YM
Louisiana State University Medical Center, School of Nursing, New Orleans, USA. ysterl@nomvs.lsumc.edu
Jones
L C
LC
Johnson
D H
DH
Bowen
M R
MR
D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D017028:Caregivers / Q000523:psychology*; D002908:Chronic Disease / Q000451:nursing*; D003430:Cross-Sectional Studies; D005163:Factor Analysis, Statistical; D005260:Female; D018939:Holistic Nursing; D006701:Home Nursing; D006801:Humans; D007223:Infant; D008297:Male; D008875:Middle Aged; D009730:Nursing Assessment / Q000379:methods*; D010371:Pediatric Nursing; D011594:Psychometrics; D012067:Religion; D015203:Reproducibility of Results; D012944:Social Support