title: Assessing quality of life in chronic non-specific lung disease--a review of empirical studies published between 1980 and 1994.
abstract: Chronic non-specific lung disease (CNSLD), a chronic disease with considerable prevalence and mortality rates, is not only a medical problem, it also has significant psychological and social consequences for the patients concerned. Quality of life research on CNSLD has been rather underdeveloped for quite a long period of time, but has recently become an important topic in research as well as in patient care. In order to get insight into the state of the art of empirical research on quality of life (QOL) in CNSLD, a review of the literature between 1980-1994 on this topic is presented. Special attention is paid to definitions and operationalizations of the QOL concept as well as on questionnaires used to assess QOL and the aims of QOL research. Analysis reveals that QOL is seldom defined clearly and is operationalized in a variety of ways. Most studies have a descriptive nature or pertain to clinical trials. The negative impact of CNSLD on QOL is well-documented and shows the importance of incorporating assessment of QOL in research as well as in patient care. Future research is called for, which should be theory-driven, taking into account recent developments concerning disease-specific measures of QOL.
authors.affiliation: Department of Psychiatry, University of Leiden, Oegstgeest, Netherlands.
authors.forename: A R
authors.initials: AR
authors.lastname: Maillé
authors.forename: A A
authors.initials: AA
authors.lastname: Kaptein
authors.forename: J C
authors.initials: JC
authors.lastname: de Haes
authors.forename: W T
authors.initials: WT
authors.lastname: Everaerd
mesh_terms: D006801:Humans; D008173:Lung Diseases, Obstructive / Q000523:psychology*; D011594:Psychometrics; D011788:Quality of Life; D011795:Surveys and Questionnaires