"Decoding" informed consent. Insights from women regarding breast cancer susceptibility testing.
Cancer susceptibility testing is likely to become routine in medical practice, despite many limitations and unanswered questions. These uncertainties greatly complicate the process of informed consent, creating an excellent opportunity to reconsider exactly how it should be conducted. Research with women's reactions to the availability of genetic susceptibility testing for breast cancer dramatically underscores that informed consent ought to be highly individualized, taking care to discern what patients believe about the disease and its causes and what role they want their physician to play.
Geller
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G
Strauss
M
M
Bernhardt
B A
BA
Holtzman
N A
NA
D001294:Attitude to Health; D001943:Breast Neoplasms / Q000235:genetics*; D032882:Comprehension; D003657:Decision Making; D030881:Disclosure; D005260:Female; D017144:Focus Groups; D020022:Genetic Predisposition to Disease; D005820:Genetic Testing / Q000523:psychology*; D006801:Humans; D007258:Informed Consent; D010353:Patient Education as Topic; D026684:Personal Autonomy; D036301:Qualitative Research; D012106:Research; D012945:Social Values; D035502:Trust; D035501:Uncertainty