title: Personal illness models of diabetes: preadolescents and adolescents.
abstract: The purpose of this research study was to explore personal illness models of preadolescents and adolescents regarding diabetes mellitus. Personal illness models were defined as the adolescents' cognitive representations of their disease. Sixty children ages 10 to 17 years with a diagnosis of insulin-dependent diabetes mellitus were interviewed using a semistructured questionnaire. Data were content analyzed for common themes. Although most participants expressed an understanding that their disease would last a lifetime, they were hopeful for a cure. Participants wanted healthcare professionals to provide strategies for controlling blood glucose to prevent future complications. Family and friends who followed the same diet as the adolescent with diabetes were viewed as supportive. The majority of adolescents were responsible for much of their own disease management. Their greatest fears concerned insulin reactions and long-term complications such as amputation of limbs.
authors.affiliation: Division of Endocrinology, Children's Hospital Medical Center, Cincinnati, Ohio (Ms Standiford)
authors.forename: D A
authors.initials: DA
authors.lastname: Standiford
authors.affiliation: The Divi­sion of Patient Services, Children's Hospital Medical Center, Cincinnati, Ohio (Mss Turner, Allen, Drozda and Dr McCain)
authors.forename: A M
authors.initials: AM
authors.lastname: Turner
authors.affiliation: The Divi­sion of Patient Services, Children's Hospital Medical Center, Cincinnati, Ohio (Mss Turner, Allen, Drozda and Dr McCain)
authors.forename: S R
authors.initials: SR
authors.lastname: Allen
authors.affiliation: The Divi­sion of Patient Services, Children's Hospital Medical Center, Cincinnati, Ohio (Mss Turner, Allen, Drozda and Dr McCain)
authors.forename: D J
authors.initials: DJ
authors.lastname: Drozda
authors.affiliation: The Divi­sion of Patient Services, Children's Hospital Medical Center, Cincinnati, Ohio (Mss Turner, Allen, Drozda and Dr McCain)
authors.forename: G C
authors.initials: GC
authors.lastname: McCain
mesh_terms: D000293:Adolescent; D002648:Child; D003922:Diabetes Mellitus, Type 1 / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D008960:Models, Psychological; D015404:Nursing Methodology Research; D000297:Psychology, Adolescent; D002666:Psychology, Child; D012648:Self Care; D012803:Sick Role; D011795:Surveys and Questionnaires