[Ventilation--and what then? Report of experiences from the viewpoint of the German Society of Muscular Diseases e.V. DGM].
Without doubt respiratory improves life conditions and quality of life of people suffering from neuromuscular disease. Concerning medical-technical possibilities there are only few problems. The respiratory machines, developed during the last years, allow an outpatient treatment with special masks as well as with help of tracheotomy. Yet the medical concept has only small effects if there is something wrong with the psychosocial and psychological conditions. Considering the fact that respiratory prolongs patients life but does not cure, there is a serious problem for patients, their families, the nursing staff and-more and more doctors. For the patients and their families as well as the nursing staff it is necessary to get qualified at time for the outpatient situation already before dismission from hospital. Afterwards they need additional advice and support for solving the daily-life-problems and for saving care-quality in an extensive sense.
Klier
H
H
Sozialreferentin, Deutsche Gesellschaft für Muskelkranke e. V. DGM.
D000553:Ambulatory Care; D005858:Germany; D018575:Home Care Services, Hospital-Based; D006801:Humans; D009468:Neuromuscular Diseases / Q000523:psychology* / Q000534:rehabilitation; D011788:Quality of Life; D012121:Respiration, Artificial / Q000523:psychology*; D012131:Respiratory Insufficiency / Q000523:psychology*
Beatmung--und was dann? Erfahrungbericht aus Sicht der Deutschen Gesellschaft für Muskelkranke e. V. DGM.