title: The urological fate of young adults with myelomeningocele: a three decade follow-up study.
abstract: OBJECTIVE
  Virtually all patients with myelomeningocele suffer from neurogenic disorder of the bladder. Problems with incontinence are common and there is also a risk of deterioration of renal function. The aim of the present study was to determine the long-term urological fate of this patient group.
  
  
  METHODS
  Twelve young adults with myelomeningocele were interviewed and their records reviewed.
  
  
  RESULTS
  The patients started clean intermittent catheterization (CIC) at the age of 10-21 years. Three patients underwent urological surgery prior to the start of CIC. This was also the case for 3 patients after having started CIC. Only 1 patient is completely continent. In the rest, the degree of incontinence varies. With few exceptions, the glomerular filtration rate was well preserved. Six of the incontinent patients had, on at least one occasion, denied incontinence to his doctor.
  
  
  CONCLUSIONS
  It seems that the prognosis is good as far as renal function is concerned. However, continence is a prerequisite for good social adjustment. An obstacle for a rational treatment of incontinence, in the adolescent patient group, is the patient's strong tendency to underreport the actual incontinence situation. Thus, every effort must be made in order to obtain a correct history. In patients with validated incontinence, an aggressive treatment policy, including surgical intervention, is justified.
authors.affiliation: Department of Urology, Umeå University Hospital, Sweden.
authors.forename: R
authors.initials: R
authors.lastname: Peeker
authors.forename: J E
authors.initials: JE
authors.lastname: Damber
authors.forename: K
authors.initials: K
authors.lastname: Hjälmås
authors.forename: J G
authors.initials: JG
authors.lastname: Sjödin
authors.forename: M
authors.initials: M
authors.lastname: von Zweigbergk
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D008297:Male; D008591:Meningomyelocele / Q000150:complications* / Q000601:surgery; D011379:Prognosis; D001750:Urinary Bladder, Neurogenic / Q000150:complications* / Q000503:physiopathology / Q000628:therapy; D014549:Urinary Incontinence / Q000209:etiology; D014563:Urodynamics