Communicating breast cancer on-line: support and empowerment on the Internet.
Using participant-observation and discourse analysis, this study explores the communication occurring on the Breast Cancer List, an on-line discussion group which continues to grow in membership and activity. Issues discussed include the evolution of the List, who participates, what topics are discussed. Three major dimensions are identified: exchange of information, social support, and personal empowerment. Social support via computer is compared with face-to-face groups. Empowerment centers on enhanced decision-making and preparation for new illness-related experiences. The influence of gender is considered in terms of communicative style and limitations of access. It is concluded that the List fulfills the functions of a community, with future concerns about information control and the potential to enhance patient-provider understanding.
Sharf
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Department of Medical Education, University of Illinois at Chicago 60612, USA. BSharf@UIC.edu
D000328:Adult; D001943:Breast Neoplasms / Q000517:prevention & control / Q000523:psychology*; D003142:Communication; D003195:Computer Communication Networks; D005260:Female; D006801:Humans; D007255:Information Services; D008875:Middle Aged; D015404:Nursing Methodology Research; D009862:Online Systems; D011209:Power, Psychological; D012657:Self-Help Groups / Q000458:organization & administration*; D012944:Social Support