title: Transplantation in children. A longitudinal assessment of mothers' stress, coping, and perceptions of family functioning.
abstract: This study examined the parenting stress, coping resources, and family functioning among 27 mothers of children undergoing bone marrow, liver, kidney, and heart transplantation. The mothers completed a comprehensive battery of psychological instruments at the pretransplant stage and at 1- and 6-month posttransplant stages. Increased parenting stress, financial strain, caregiver burden, and family stress were reported following transplantation and persisted for several months. The mothers reported using coping strategies characterized by attempts to maintain family integration and to understand the child's medical situation. Development and evaluation of intervention programs to enhance parents' ability to cope with stress and maintain family stability are warranted.
authors.affiliation: Center for Pediatric Psychology and Family Studies, University of Florida Health Science Center, Gainesville 32610-0165, USA.
authors.forename: J R
authors.initials: JR
authors.lastname: Rodrigue
authors.forename: K
authors.initials: K
authors.lastname: MacNaughton
authors.forename: R G
authors.initials: RG
authors.lastname: Hoffmann
authors.forename: J
authors.initials: J
authors.lastname: Graham-Pole
authors.forename: J M
authors.initials: JM
authors.lastname: Andres
authors.forename: D A
authors.initials: DA
authors.lastname: Novak
authors.forename: R S
authors.initials: RS
authors.lastname: Fennell
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D017281:Cost of Illness; D005195:Family Relations / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D009034:Mother-Child Relations; D009035:Mothers / Q000523:psychology*; D016377:Organ Transplantation / Q000523:psychology*; D016487:Parenting / Q000523:psychology; D012803:Sick Role; D013315:Stress, Psychological / Q000150:complications*