title: Caregiver issues and AIDS orphans: perspectives from a social worker focus group.
abstract: This study examines social workers' perceptions of the needs of families coping with acquired immunodeficiency syndrome (AIDS). This research investigates the problems of family caregivers of children orphaned by human immunodeficiency virus (HIV)-related death of their parents. A qualitative semistructured interview format was used in a focus group of 18 social workers. Four questions were designed to assess family needs and resources, as well as to evaluate the social workers' perspectives of governmental policies affecting these families. A list of four problems and two recommendations for change evolved from the focus group. Inadequate finances to house and care for the children was the primary cause for distress in these families. The major governmental policy that hindered the social workers' ability to assist families pertained to the low financial entitlement for caregivers who are related to the orphaned child. It was noted that unrelated caregivers receive substantially more money for the care of these children than family caregivers receive. Recommendations were made to change this policy and to develop guardianship laws that facilitate families' abilities to provide care to AIDS orphans. Family caregivers of AIDS orphans are bombarded with great demands and limited resources. This analysis of their situation from the social workers' perspective is a positive step toward the improvement of support services for these families. Further research should include individual qualitative interviews assessing the needs of the caregivers and AIDS orphans.
authors.affiliation: Department of Family Medicine, NJ Medical School-UMDNJ, Newark 07103, USA.
authors.forename: C Y
authors.initials: CY
authors.lastname: Paige
authors.forename: M S
authors.initials: MS
authors.lastname: Johnson
mesh_terms: D000163:Acquired Immunodeficiency Syndrome; D017028:Caregivers; D002648:Child; D016241:Child of Impaired Parents; D005581:Foster Home Care; D006801:Humans; D009518:New York; D011640:Public Policy; D012946:Social Welfare