title: [Patient satisfaction with the information in received after molecular oncology examination of bladder cancer].
abstract: A questionnaire was mailed to participants in a scientific project on the molecular oncology of bladder cancer to evaluate the participants' satisfaction with the information procedure as required by the Helsinki Deklaration and the Danish Law on a Scientific Ethical Committee System. Of the 584 questionnaires sent 73% were returned. Ninety percent of the respondents were satisfied with the written and 85% with the oral information given before entering the study. Seventy-six percent were satisfied with the timing of the information, and 83% (bladder cancer group) or 73% (control group, BPH' patients) were satisfied with the length of time, given for consideration on entering the study. Very few patients had felt any pressure to participate in the scientific project. Most patients were willing to participate in other scientific studies, and the majority of patients favoured the creation of tissue banks.
authors.affiliation: Arhus Universitetshospital, Skejby Sygehus, urinvejskirurgisk afdeling K.
authors.forename: B
authors.initials: B
authors.lastname: Hein
authors.forename: H
authors.initials: H
authors.lastname: Wolf
mesh_terms: D000328:Adult; D000368:Aged; D003718:Denmark; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D008967:Molecular Biology; D010353:Patient Education as Topic; D017060:Patient Satisfaction; D011795:Surveys and Questionnaires; D014015:Tissue Banks; D001749:Urinary Bladder Neoplasms / Q000235:genetics / Q000473:pathology*