The amyotrophic lateral sclerosis (ALS) support network of Kentucky: an informational support group using interactive video.
Support groups are beneficial to ALS patients and their families by providing a forum for discussion and emotional support. The low prevalence of ALS and the patients limited mobility make it difficult to sustain support groups in rural environments. We describe the organization of an ALS support network in the Commonwealth of Kentucky using real-time, interactive video.
Kasarkis
E J
EJ
Department of Neurology, University of Kentucky and Veterans Affairs Medical Centers, Lexington 40511, USA. kasarkis.edward_j+@lexington.va.gov
Elza
T A
TA
Bishop
N G
NG
Spears
A C
AC
D000293:Adolescent; D000328:Adult; D000368:Aged; D000690:Amyotrophic Lateral Sclerosis / Q000523:psychology*; D002648:Child; D005260:Female; D006801:Humans; D007629:Kentucky; D008297:Male; D008875:Middle Aged; D012657:Self-Help Groups / Q000458:organization & administration*; D014743:Videotape Recording