title: Educational and support needs of patients and their families awaiting cardiac surgery.
abstract: OBJECTIVE
  To identify and explore the learning and support needs of patients and families during the waiting period before cardiac surgery.
  
  
  METHODS
  Prospective, cross-sectional cohort survey design.
  
  
  METHODS
  University-affiliated tertiary cardiovascular care center in mideastern Canada.
  
  
  METHODS
  One hundred forty-seven patients currently on the cardiac surgery waiting list, and 125 family members of these patients.
  
  
  METHODS
  Needs Inventory for Patients who Wait.
  
  
  METHODS
  All patients were sent a survey for themselves and one for a family member that included: a demographic profile, subjective questionnaire, and the Needs Inventory for Patients who Wait. The survey was to be completed and returned to the investigators.
  
  
  RESULTS
  The return rates were 77% (113) for patients, and 70% (87) for family members. For patients and their family members, item rankings were highly correlated for areas in which they wanted information (r = 0.84), and for areas that caused them the most concern (r = 0.91). Family members were also concerned about caring for the patient before and after surgery. The number of weeks on the waiting list (< 1 month to > 6 months) did not change the concerns of patients and family.
  
  
  CONCLUSIONS
  This survey identifies some of the educational and support needs of patients undergoing cardiac surgery and their family members. Patients are concerned about their health and survival until the surgical procedure, as well as about the success of the procedure. Families share patients' concerns and have an additional concern regarding how to support the patient during the perioperative stage. The needs identified by patients and their families in this survey were found to be stable over time, and within the realm of nursing practice to address.
authors.affiliation: Department of Nursing, University of Ottawa Heart Institute, Ottawa Civic Hospital, Ontario, Canada.
authors.forename: P
authors.initials: P
authors.lastname: Lindsay
authors.forename: H
authors.initials: H
authors.lastname: Sherrard
authors.forename: L
authors.initials: L
authors.lastname: Bickerton
authors.forename: P
authors.initials: P
authors.lastname: Doucette
authors.forename: C
authors.initials: C
authors.lastname: Harkness
authors.forename: J
authors.initials: J
authors.lastname: Morin
mesh_terms: D000328:Adult; D000368:Aged; D002170:Canada; D006348:Cardiac Surgical Procedures / Q000523:psychology; D003430:Cross-Sectional Studies; D004522:Educational Status; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D010353:Patient Education as Topic; D010361:Patients / Q000523:psychology*; D011446:Prospective Studies; D011795:Surveys and Questionnaires; D013997:Time Factors; D014850:Waiting Lists