title: Defining and measuring outcomes in end-stage dementia.
abstract: Dementia is a life-defining illness that impacts both patients and their loved ones. For dying patients with dementia, there are important and meaningful outcomes that reflect the quality of care. The authors propose 13 domains to examine the quality of care and make the argument that for these patients and their families, measures of satisfaction and patient or family reports of specific events may be the most important markers of the quality of care.
authors.affiliation: Center to Improve Care of the Dying, George Washington University, Washington, District of Columbia, USA.
authors.forename: J M
authors.initials: JM
authors.lastname: Teno
authors.forename: K
authors.initials: K
authors.lastname: Landrum
authors.forename: J
authors.initials: J
authors.lastname: Lynn
mesh_terms: D000368:Aged; D017028:Caregivers; D003643:Death; D003704:Dementia / Q000523:psychology / Q000628:therapy; D005191:Family Characteristics; D006801:Humans; D008875:Middle Aged; D017063:Outcome Assessment, Health Care; D017060:Patient Satisfaction; D011785:Quality Assurance, Health Care; D011788:Quality of Life; D012944:Social Support