title: Developing a national registry of veterans with spinal cord dysfunction: experiences and implications.
abstract: We describe the development of a registry of veterans with spinal cord dysfunction who have been treated within the Department of Veterans Affairs health care facilities. The registry departs from the function and structure of traditional registries by a more extensive utilization of advances in computer technology; in particular, by its reliance upon computerized record linkage and by its association with a set of computer-based clinical management and reporting tools. We discuss some of the applications of the registry to research for persons with spinal cord dysfunction as well as implications that our experiences provide for developing other registries of persons with disabilities.
authors.affiliation: Center for Health Policy Research and Education, Duke University, Durham, NC, USA.
authors.forename: G
authors.initials: G
authors.lastname: Samsa
authors.forename: H
authors.initials: H
authors.lastname: Hoenig
authors.forename: J
authors.initials: J
authors.lastname: Carswell
authors.forename: R
authors.initials: R
authors.lastname: Sloane
authors.forename: C R
authors.initials: CR
authors.lastname: Bovender
authors.forename: C
authors.initials: C
authors.lastname: VanDeusen Lukas
authors.forename: R D
authors.initials: RD
authors.lastname: Horner
mesh_terms: D006801:Humans; D012042:Registries; D013119:Spinal Cord Injuries / Q000523:psychology*; D009626:Terminology as Topic; D014481:United States; D014493:United States Department of Veterans Affairs; D014728:Veterans