title: [Evaluation of the quality of life in pediatrics: how to collect the point of view of children].
abstract: There are very few available child quality of life questionnaires. We describe here a French questionnaire (AUQUEI) which consists of a structured format scale (26 items). The first part of the questionnaire studies child satisfaction. Response levels are measured by checking faces expressing different emotional states. The validation is satisfactory, and the questionnaire is able to differentiate healthy children from sick children (HIV positive). A second part of the questionnaire focuses on the child's own quality of life, and is based upon open-ended questions. This second approach allows to broaden the structured format scale and improves the understanding of the child's quality of life. It constitutes a necessary complement to the first part as it avoids using mechanically adult-specific concepts for children. We also found it to be sensitive enough to distinguish sick children from healthy ones. The AUQUEI questionnaire with its two complementary parts appears to be a potentially valuable tool to better understand the experience of sick children, in the various aspects of their life, and to follow their evolution.
authors.affiliation: Script Inserm et Apret 290, Lyon, France.
authors.forename: S
authors.initials: S
authors.lastname: Manificat
authors.forename: A
authors.initials: A
authors.lastname: Dazord
authors.forename: P
authors.initials: P
authors.lastname: Cochat
authors.forename: J
authors.initials: J
authors.lastname: Nicolas
mesh_terms: D000367:Age Factors; D002648:Child; D002675:Child, Preschool; D005069:Evaluation Studies as Topic; D005260:Female; D006679:HIV Seropositivity / Q000453:epidemiology; D006801:Humans; D016030:Kidney Transplantation / Q000706:statistics & numerical data; D008297:Male; D017060:Patient Satisfaction; D011788:Quality of Life; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires
vernacular_title: Evaluation de la qualité de vie en pédiatric: comment recueillir le point de vue de l'enfant.