title: The Epilepsy Outcome Scale: the development of a measure for use with carers of people with epilepsy plus intellectual disability.
abstract: This paper describes the development of a new scale for the assessment of epilepsy in people with learning disabilities. The scale was developed and validated in consultation with principal carers, and reflects their concerns about seizures, their impact and their treatment. Further testing of the scale revealed high internal consistency, testretest reliability and a robust factor structure. The scale can be completed in 5-10 min and may be useful as an outcome measure both in clinical practice and in research trials.
authors.affiliation: Department of Psychological Medicine, University of Glasgow, Scotland.
authors.forename: C A
authors.initials: CA
authors.lastname: Espie
authors.forename: A
authors.initials: A
authors.lastname: Paul
authors.forename: M
authors.initials: M
authors.lastname: Graham
authors.forename: M
authors.initials: M
authors.lastname: Sterrick
authors.forename: J
authors.initials: J
authors.lastname: Foley
authors.forename: C
authors.initials: C
authors.lastname: McGarvey
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D000927:Anticonvulsants / Q000009:adverse effects / Q000627:therapeutic use; D001007:Anxiety / Q000175:diagnosis / Q000523:psychology; D017028:Caregivers / Q000523:psychology; D002648:Child; D017281:Cost of Illness; D003863:Depression / Q000175:diagnosis / Q000523:psychology; D004827:Epilepsy / Q000175:diagnosis* / Q000523:psychology / Q000534:rehabilitation; D005260:Female; D006801:Humans; D008607:Intellectual Disability / Q000175:diagnosis* / Q000523:psychology / Q000534:rehabilitation; D008297:Male; D008875:Middle Aged; D017063:Outcome Assessment, Health Care / Q000706:statistics & numerical data*; D015203:Reproducibility of Results; D012640:Seizures / Q000175:diagnosis / Q000523:psychology / Q000534:rehabilitation; D012803:Sick Role
chemical_list: D000927:Anticonvulsants