title: The Clinical Standards Advisory Group (CSAG) Cleft Lip and Palate Study.
abstract: A national study of care and outcomes in children born with a unilateral cleft lip and palate (UCLP) was performed over a 15-month period. Two cohorts of children ('5-year-olds' and '12-year-olds') were examined. There were 57 active cleft teams in the U.K. with 105 consultant orthodontists involved in the care of these children. Only 36 teams could provide basic data such as patients names. Of the patients, 47-51 per cent had neonatal appliances. The dental arch relationships were measured with the Goslon Index and a Five-Year-Old Index, 37-39 per cent of both age groups were either 'poor' or 'very poor'. Seventy per cent of the 12-year-old patients had a Skeletal III relation and 42 per cent of bone grafts were seriously deficient or failed. Dental treatment for active caries was needed by 40 per cent of 5-year-olds and 20 per cent of 12-year-olds. In addition, the training of recently appointed consultant orthodontists involved in the care of these children was scrutinized. As a whole, the results were disappointing with standards of care not significantly raised in the last decade. Recommendations have been made to the Department of Health and the implications for the orthodontic profession are explored. Overall, it seems that fewer orthodontists will need to be involved in a centralized care model for these children.
authors.affiliation: Division of Child Dental Health, University of Bristol Dental School, Bristol, U.K.
authors.forename: J
authors.initials: J
authors.lastname: Sandy
authors.forename: A
authors.initials: A
authors.lastname: Williams
authors.forename: S
authors.initials: S
authors.lastname: Mildinhall
authors.forename: T
authors.initials: T
authors.lastname: Murphy
authors.forename: D
authors.initials: D
authors.lastname: Bearn
authors.forename: B
authors.initials: B
authors.lastname: Shaw
authors.forename: D
authors.initials: D
authors.lastname: Sell
authors.forename: B
authors.initials: B
authors.lastname: Devlin
authors.forename: J
authors.initials: J
authors.lastname: Murray
mesh_terms: D016025:Bone Transplantation / Q000592:standards* / Q000706:statistics & numerical data; D002648:Child; D002675:Child, Preschool; D002971:Cleft Lip / Q000150:complications / Q000453:epidemiology / Q000601:surgery; D002972:Cleft Palate / Q000150:complications / Q000453:epidemiology / Q000601:surgery; D015331:Cohort Studies; D019230:Dental Audit; D003731:Dental Caries / Q000209:etiology / Q000628:therapy; D006287:Health Planning Guidelines; D006297:Health Services Accessibility; D006801:Humans; D008310:Malocclusion / Q000209:etiology / Q000628:therapy; D019647:Oral Surgical Procedures / Q000592:standards* / Q000706:statistics & numerical data; D009970:Orthodontics / Q000193:education / Q000592:standards; D009971:Orthodontics, Corrective / Q000592:standards*; D017063:Outcome Assessment, Health Care; D017060:Patient Satisfaction; D013218:State Dentistry / Q000706:statistics & numerical data; D011795:Surveys and Questionnaires; D006113:United Kingdom / Q000453:epidemiology