title: Participatory research with native community of Kahnawake creates innovative Code of Research Ethics.
abstract: Participatory research requires ethical guidelines to incorporate the needs of the partners, i.e., the researchers and the community. This paper describes the background, development and implementation of an innovative Code of Research Ethics developed for a participatory research project with a Native community in Canada. The document ensures that responsibility and control will be shared by both researchers and community throughout the project including joint publication of the results. It defines community control of data, means of resolving dissension at time of publication, incorporation of new researchers and the differences between community-based and academic researchers.
authors.affiliation: Kateri Memorial Hospital Center, Kahnawake, QC. mcnn@musica.mcgill.ca
authors.forename: A C
authors.initials: AC
authors.lastname: Macaulay
authors.forename: T
authors.initials: T
authors.lastname: Delormier
authors.forename: A M
authors.initials: AM
authors.lastname: McComber
authors.forename: E J
authors.initials: EJ
authors.lastname: Cross
authors.forename: L P
authors.initials: LP
authors.lastname: Potvin
authors.forename: G
authors.initials: G
authors.lastname: Paradis
authors.forename: R L
authors.initials: RL
authors.lastname: Kirby
authors.forename: C
authors.initials: C
authors.lastname: Saad-Haddad
authors.forename: S
authors.initials: S
authors.lastname: Desrosiers
mesh_terms: D002170:Canada; D003924:Diabetes Mellitus, Type 2 / Q000517:prevention & control; D004992:Ethics, Medical; D006801:Humans; D007198:Indians, North American; D011322:Primary Prevention / Q000458:organization & administration; D012106:Research / Q000592:standards*