title: Living with breast cancer: care givers' perceptions in a surgical ward.
abstract: Caring for women with breast cancer has potential for increasing care giver distress and anxiety. Knowledge of the threats implicit in the disease and treatment as well as overidentification with the patient form the basis for this outcome. In order to describe perceptions of breast cancer as an illness, semistructured interviews were carried out with 37 care givers at a surgical department. The interviews were tape-recorded and transcribed verbatim. An analysis was then carried out of the stories told by the care givers about breast cancer as an illness. The results indicated that breast cancer as an illness gave rise to predominantly negative and dark associations among the care givers. Their experiences of caring for women in critical stages of the illness over many years appear to have had a negative influence on them. Death itself, and even more so the process leading to the end, were very tangible in their stories. The article concludes that care givers on a surgical ward have a fragmented picture of the patients and need to be given opportunities to follow the total care process. Those care givers who were able to follow the women's stages of illness throughout more often had a positive picture.
authors.affiliation: Department of Health and Social Care, Mid Sweden University, Ostersund, Sweden.
authors.forename: G
authors.initials: G
authors.lastname: Odling
authors.forename: E
authors.initials: E
authors.lastname: Danielson
authors.forename: S B
authors.initials: SB
authors.lastname: Christensen
authors.forename: A
authors.initials: A
authors.lastname: Norberg
mesh_terms: D000328:Adult; D001291:Attitude of Health Personnel; D001293:Attitude to Death; D001943:Breast Neoplasms / Q000451:nursing* / Q000523:psychology; D003266:Continuity of Patient Care; D005260:Female; D006801:Humans; D008875:Middle Aged; D015403:Nursing Evaluation Research; D009741:Nursing Staff, Hospital / Q000523:psychology*; D010465:Perception; D013503:Surgery Department, Hospital