Mortality in persons with developmental disabilities after transfer into community care.
More than 2,000 persons with developmental disabilities have been transferred from California state institutions into community care in recent years. We investigated whether this has been accompanied by a change in mortality rates, using data on 1,878 clients moved since April 1993. Mortality rates were compared to those expected for comparable persons in institutions. Risk-adjusted mortality rates for movers exceeded institutional rates by 51%, p < .05. After removal of cancer deaths in both groups, this increased to 67%. The effect was largest shortly after the move and in the subjects who had moved most recently. The deinstitutionalization process in California appears to have resulted in a substantial increase in mortality, indicating the need to ensure continuous, consistent, and competent medical care and supervision in the community.
Strauss
D
D
Department of Statistics, University of California, Riverside 92521, USA. strauss@citrus.ucr.edu
Shavelle
R
R
Baumeister
A
A
Anderson
T W
TW
D000203:Activities of Daily Living; D002140:California / Q000453:epidemiology; D002423:Cause of Death; D016009:Chi-Square Distribution; D015331:Cohort Studies; D016001:Confidence Intervals; D003688:Deinstitutionalization / Q000706:statistics & numerical data*; D005260:Female; D006801:Humans; D008607:Intellectual Disability / Q000401:mortality*; D008297:Male; D016012:Poisson Distribution; D012044:Regression Analysis; D012189:Retrospective Studies; D012306:Risk; D013997:Time Factors