title: [Improvement of QOL by advance in the management of respiratory disorders, dysphagia and upper gastrointestinal disorders in children with severe cerebral palsy].
abstract: In children with severe cerebral palsy, the daily use of naso-pharyngeal airway, daily chest physiotherapy and adequate posture control markedly improve respiratory disorders and their consequent complications. Non-invasive ventiratory support methods such as nasal IPPV and nasal CPAP can be also effective. Enteral feeding through a naso-jejunal catheter can successfully manage feeding difficulty due to gastroesophageal reflux when surgical treatment is difficult. Exact assessment of aspiration by adequately performed video-fluoroscopic swallowing examination leads to national management of dysphagia. Tube feeding by intermittent oro-gastric catheterization combined with oral feeding is useful way in many dysphagic children. Surgical treatment for prevention of aspiration markedly improves the general condition. These treatments and managements have markedly improved the QOL, of children with severe cerebral palsy in many aspects. Cooperation of pediatricians, parents, school teachers and other community staffs is necessary for appropriate daily management of medical problems of these children.
authors.affiliation: Department of Pediatrics, National Rehabilitation Center for Disabled Children, Tokyo.
authors.forename: E
authors.initials: E
authors.lastname: Kitazumi
mesh_terms: D000293:Adolescent; D002547:Cerebral Palsy / Q000150:complications / Q000534:rehabilitation*; D002648:Child; D003153:Community Health Services; D003680:Deglutition Disorders / Q000628:therapy*; D004750:Enteral Nutrition; D005767:Gastrointestinal Diseases / Q000628:therapy*; D006801:Humans; D010348:Patient Care Team; D011175:Positive-Pressure Respiration; D011788:Quality of Life; D012120:Respiration Disorders / Q000628:therapy*