title: Learning disability and epilepsy. 2, a review of available outcome measures and position statement on development priorities.
abstract: People with epilepsy plus learning disabilities pose a challenge in terms of clinical management and research investigation, and, to date, the measurement of outcomes in this population has been limited. There have been uncertainties concerning both the 'what' and the 'how' of assessment. This paper presents a comprehensive review of available outcome measures across nine domains, i.e. relating to seizures, drugs, cognitive function, behaviour, social functioning, carer functioning, attitudes, motivation and 'quality of life'. This last domain reflects more global measures designed to encompass several assessment strands. The uses and limitations of each scale is discussed and, where data are available, psychometric properties are also presented. The paper concludes with suggestions for the further development of outcome measures in this population.
authors.affiliation: Department of Psychological Medicine, Academic Centre, Gartnavel Royal Hospital, Glasgow, UK.
authors.forename: C A
authors.initials: CA
authors.lastname: Espie
authors.forename: M
authors.initials: M
authors.lastname: Kerr
authors.forename: A
authors.initials: A
authors.lastname: Paul
authors.forename: G
authors.initials: G
authors.lastname: O'Brien
authors.forename: T
authors.initials: T
authors.lastname: Betts
authors.forename: J
authors.initials: J
authors.lastname: Clark
authors.forename: A
authors.initials: A
authors.lastname: Jacoby
authors.forename: G
authors.initials: G
authors.lastname: Baker
mesh_terms: D004827:Epilepsy / Q000150:complications* / Q000523:psychology / Q000628:therapy*; D006801:Humans; D007859:Learning Disabilities / Q000150:complications* / Q000523:psychology / Q000628:therapy*; D017063:Outcome Assessment, Health Care; D012106:Research