title: Perception of service needs by parents with intellectual disability, their significant others and their service workers.
abstract: It is well recognized in the literature that parents with intellectual disability require support and social services. There is growing interest in these services being responsive to parent-identified concerns, particularly as it has been suggested that parents' concerns may differ from those reported by service workers, family members, or friends. In the Australian study reported here, the views of parents with intellectual disability, their significant others and service workers were sought on parents' service needs on 20 items incorporating child care, social and community living, and domestic skills. There were significant differences in the perceptions of the parents, workers, and significant others on the help parents needed. Several gaps in services were also identified. From the parents' perspective, their greatest unmet needs were in the community participation area, specifically with help to explore work options, to know what community services are available and how to access these, and to meet people and make friends.
authors.affiliation: Faculty of Health Sciences, University of Sydney, Lidcombe NSW, Australia. g.llewellyn@cchs.usyd.edu.au
authors.forename: G
authors.initials: G
authors.lastname: Llewellyn
authors.forename: D
authors.initials: D
authors.lastname: McConnell
authors.forename: R
authors.initials: R
authors.lastname: Bye
mesh_terms: D000704:Analysis of Variance; D001315:Australia; D019058:Community Networks; D003625:Data Collection; D004495:Education of Persons with Intellectual Disabilities / Q000458:organization & administration*; D005190:Family; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006301:Health Services Needs and Demand / Q000458:organization & administration* / Q000706:statistics & numerical data; D006801:Humans; D007398:Interpersonal Relations; D008297:Male; D016487:Parenting; D019989:Persons with Intellectual Disabilities / Q000534:rehabilitation*; D012144:Respite Care; D012649:Self Concept; D012946:Social Welfare; D012947:Social Work; D012963:Sociometric Techniques; D018709:Statistics, Nonparametric