Bioethics in pediatric neuromuscular disease.
The increasing frequency with which bioethical issues arise in the medical care of pediatric patients with neuromuscular disease suggests a need for a working knowledge of the field for the clinical physician, Institutional Bioethics Committees are multidisciplinary groups that include medical, nursing, social service, legal, religious or chaplaincy, and community representation. The role and functioning of these committees vary widely according to institution. Inherent in the process of consent is that it must be an Informed consent. This requires that the person consenting has been given adequate information to understand and to appreciate the benefits and risks of the treatment. There are some instances in which consent by minor patients is necessary.
Smith
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Department of Surgery, University of Texas South-western Medical Center, Dallas 75235, USA.
D000293:Adolescent; D000465:Algorithms; D001675:Bioethics; D002648:Child; D002675:Child, Preschool; D003657:Decision Making; D017041:Ethics Committees / Q000458:organization & administration; D005260:Female; D005817:Genetic Counseling / Q000331:legislation & jurisprudence; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D007258:Informed Consent / Q000331:legislation & jurisprudence*; D007882:Legislation, Hospital; D008297:Male; D016743:Mental Competency; D009468:Neuromuscular Diseases / Q000628:therapy*; D010372:Pediatrics / Q000331:legislation & jurisprudence; D018458:Persistent Vegetative State; D016414:Resuscitation Orders / Q000331:legislation & jurisprudence; D013781:Texas