Evaluation of a statewide program in genetic diseases.
We used the Genetics Office Automation System (GOAS), a database management system designed to facilitate collection and analysis of medical genetic data, to evaluate the Missouri Genetics Disease Program (MGDP). From 1985 through 1995, patient data were collected at four tertiary care genetic centers. The number of genetic visits per 100,000 people more than doubled from 1985 through 1995. The results of subpopulation analyses indicate that the MGDP has facilitated improvements in: (1) services for newborns and infants, (2) rural outreach programs, and (3) evaluation of the incidence and impact of genetic disorders.
Integrated Technology Services, University of Missouri, Columbia 65212, USA. joyce_a._mitchell@mailsvr.hsc.missouri.edu
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D000046:Academic Medical Centers; D019352:Censuses; D016208:Databases, Factual; D005817:Genetic Counseling / Q000706:statistics & numerical data; D030342:Genetic Diseases, Inborn / Q000453:epidemiology; D005820:Genetic Testing / Q000706:statistics & numerical data; D005826:Genetics, Medical; D006296:Health Services / Q000706:statistics & numerical data; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008507:Medically Underserved Area; D008913:Minority Groups / Q000706:statistics & numerical data; D008923:Missouri / Q000453:epidemiology; D011204:Poverty Areas; D015397:Program Evaluation; D019035:Rural Health Services / Q000706:statistics & numerical data; D019037:Urban Health Services / Q000706:statistics & numerical data