The art of recruitment: the foundation of family and linkage studies of psychiatric illness.
Family and linkage studies of psychiatric illness involve special benefits and challenges in the field of scientific investigation. The success of a family or linkage study is dependent on the recruitment process. The most informative and reliable method of data collection in this field of investigation is through direct interviews with as many family members as possible. Although there are circumstances when direct interviewing is not possible, there are other circumstances, such as refusal of relatives to participate, that deserve closer scrutiny. The complexities involved in the recruitment process while conducting medical investigations have been explored in the literature. However, special issues relevant to the recruitment process merit further exploration for working with families in the context of family and linkage studies of psychiatric illness. Careful understanding of this psychiatric illness. Careful understanding of this critical topic may minimize the incidence of family nonparticipation in such research endeavors. This article addresses these issues as they relate to recruiting individuals and their families in this field of investigation. These issues include the role of attitudes, values and beliefs, family interaction and the identification of influential members, informal communication networking, informed consent while promoting the research, and ethical concerns.
Bonvicini
K A
KA
Yale-VA Laboratory of Psychiatric Genetics, CT, USA. kathleen.bonvicini@yale.edu
D000328:Adult; D001008:Anxiety Disorders / Q000235:genetics*; D001294:Attitude to Health; D004992:Ethics, Medical; D005260:Female; D008040:Genetic Linkage; D006801:Humans; D008297:Male; D018579:Patient Selection; D010375:Pedigree; D018907:Privacy; D012107:Research Design