title: We're off to see the genome.
abstract: We discuss some societal and legal ramifications of the human genetics revolution. Our reflections were stimulated by discussions among scientists, citizens and legal experts at a large public symposium. We outline key issues regarding oversight of genetic research on human subjects, banking of DNA data by governments and corporations, the potential impact of behavioural genetics and effects upon racial and racist thinking. We contend that, in some cases, well-intentioned but naive efforts to protect the rights of individuals and groups may hurt everyone by blocking the progress of useful research.
authors.affiliation: Shriver Center for Mental Retardation, Waltham, Massachusetts 02452, USA.
authors.forename: P R
authors.initials: PR
authors.lastname: Reilly
authors.forename: D C
authors.initials: DC
authors.lastname: Page
mesh_terms: D016208:Databases, Factual / Q000331:legislation & jurisprudence; D030561:Databases, Nucleic Acid; D004345:Drug Industry; D004992:Ethics, Medical; D035082:Federal Government; D030661:Genetic Privacy; D036281:Genetic Research; D005824:Genetics, Behavioral; D005826:Genetics, Medical / Q000331:legislation & jurisprudence; D015894:Genome, Human; D033161:Government Regulation; D016045:Human Genome Project; D006801:Humans; D035846:Law Enforcement; D015997:Neonatal Screening / Q000331:legislation & jurisprudence / Q000379:methods / Q000639:trends; D011287:Prejudice; D035842:Research Subjects; D018570:Risk Assessment; D020458:Third-Party Consent; D006113:United Kingdom; D014481:United States