An insight into children's and adolescents' experience of seizures and epilepsy.
A qualitative study was performed to investigate the individual experience of seizures and epilepsy in children and adolescents. Forty-one patients aged between 6 and 18 years old and affected with idiopathic epilepsy underwent one or more semi-structured interviews in a hospital day unit. Children aged 7 years or older could describe the experience of partial fits (in one case also of a presumably generalized fit). Seizures which occurred 6-12 months before had often been forgotten. Psychic involvement was reported in 90.3% cases, even when seizures had been classified as partial motor according to the parents' description. Social status and school achievement had no significant influence on the patient's ability to express his or her feelings, but some children had serious difficulty finding appropriate words to describe unfamiliar experiences; other patients used a simile, uncommon expressions or odd names to describe the fit. A poor relationship was found between seizure severity and patient's discomfort, and the image of the disease appeared independent of the experience of the seizures. As regards the epilepsy itself, patients seemed to suffer from generic problems rather than from specific concern about it, but some adolescents inserted their thoughts about the disease into reflections on their existential condition.
Galletti
F
F
Dipartimento di Scienze Neurologiche e Psichiatriche dell'Età Evolutiva, University of Rome La Sapienza, Roma, Italy.
Rinna
A
A
Acquafondata
C
C
D000203:Activities of Daily Living; D000223:Adaptation, Psychological; D000293:Adolescent; D002648:Child; D004522:Educational Status; D004827:Epilepsy / Q000188:drug therapy / Q000523:psychology*; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007406:Interview, Psychological; D008297:Male; D010349:Patient Compliance / Q000523:psychology; D010817:Physician-Patient Relations; D011287:Prejudice; D012647:Self-Assessment; D012959:Socioeconomic Factors