End-of-life decisions and advance directives in palliative care: a cross-cultural survey of patients and health-care professionals.
In order to explore possible differences in the scope of end-of-life decisions and attitudes toward advance directives (AD) in palliative care, we conducted a survey of 159 patients in palliative care institutions and 93 health-care professionals experienced in palliative care in the United States, Germany, and Japan. Giving an AD in this clinical setting was considered important by patients and professionals. The prevalence of a formal written AD was 79% in the United States, 18% in Germany, and 9% in Japan. In Japan, there was a high prevalence of entrusting all decisions to the family (known as omakase). More than 80% of the patients had negative feelings toward their future decisions in the United States and Germany, in contrast to only 45% in Japan. Although favored by the professionals, there were no specific instruments for obtaining ADs. In Germany and Japan, some patients had given an informal AD. As a pilot content validity step, survey results were used to derive a checklist for content and procedural aspects in end-of-life decision-making. This checklist may provide the basis for developing an instrument to guide physicians, especially non-palliative care specialists, in communication with their patients and their families in this difficult clinical situation.
Department of Neurology, Klinikum Grosshadern, University of Munich, Germany.
R
R
Voltz
A
A
Akabayashi
C
C
Reese
G
G
Ohi
H M
HM
Sass
D016223:Advance Directives; D001291:Attitude of Health Personnel; D003431:Cross-Cultural Comparison; D005260:Female; D005858:Germany; D006801:Humans; D007564:Japan; D008297:Male; D008875:Middle Aged; D010166:Palliative Care / Q000523:psychology*; D010361:Patients / Q000523:psychology; D016414:Resuscitation Orders; D014481:United States