title: Bridging the information gap.
authors.forename: W
authors.initials: W
authors.lastname: Ricchini
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D002648:Child; D002675:Child, Preschool; D005260:Female; D030342:Genetic Diseases, Inborn / Q000628:therapy*; D006117:Grief; D006801:Humans; D007255:Information Services / Q000458:organization & administration*; D009722:Nurse Practitioners; D010290:Parents / Q000193:education* / Q000523:psychology; D011368:Professional-Family Relations