title: Autonomy in the rehabilitation of stroke patients in nursing homes. A concept analysis.
abstract: This article presents a concept analysis of autonomy in relation to the rehabilitation of stroke patients. Analysis of the results of a literature survey provided three important concepts of autonomy in the field of biomedical ethics: self-governance, self-realization and actual autonomy. These concepts are compared with concepts from caring sciences and summarized in a table. The results indicate the importance of the social environment (formal and informal caregivers) for the restoration of autonomy. Because of the patient's condition and context, a social concept of autonomy makes more sense in the rehabilitation of stroke patients in nursing homes than does an individual concept. The concept analysis sheds light on the fact that the majority of studies regarding patient autonomy are primarily based on theoretical reflections, not on empirical studies. More research is warranted to gather information on how patients themselves consider and appreciate autonomy during rehabilitation, to explore the views of stroke patients' formal and informal caregivers and to investigate whether a social concept of autonomy is suitable for all phases of rehabilitation. Concerning the practice of rehabilitation, no definite conclusion can be given as yet.
authors.affiliation: Institute for Bioethics, Maastricht, The Netherlands.
authors.forename: I M
authors.initials: IM
authors.lastname: Proot
authors.forename: H F
authors.initials: HF
authors.lastname: Crebolder
authors.forename: H H
authors.initials: HH
authors.lastname: Abu-Saad
authors.forename: R H
authors.initials: RH
authors.lastname: Ter Meulen
mesh_terms: D000368:Aged; D002561:Cerebrovascular Disorders / Q000523:psychology / Q000534:rehabilitation*; D004993:Ethics, Nursing; D005260:Female; D006801:Humans; D008297:Male; D009735:Nursing Homes; D015404:Nursing Methodology Research; D010344:Patient Advocacy; D010358:Patient Participation; D020377:Self Efficacy