title: [Ethical problems in genetic epidemiology].
abstract: Two are the principal ethical problems to be faced by the genetic epidemiological research. One has to do directly with the "creation" and "managing" of genetic information about the basic unit of the genetic epidemiological studies, that is the family. This will possibly aggravate all the difficulties regarding the subject recruitment, the informed consensus, the confidentiality of genetic results as well as their disclosure to study participants. The other concern is the potential conflict between the interests of the individual and those of the society that could arise when a screening program focused to high risk groups is implemented. Both the aspects will be discussed, according to the recent literature. The methodological work done by Muin Koury on genetic screening and public health issues will be presented.
authors.affiliation: Laboratorio di Epidemiologia e Biostatistica, Istituto Superiore di Sanità, Roma.
authors.forename: M A
authors.initials: MA
authors.lastname: Stazi
mesh_terms: D004992:Ethics, Medical; D005192:Family Health; D005820:Genetic Testing; D005826:Genetics, Medical / Q000592:standards*; D016045:Human Genome Project; D006801:Humans; D017720:Molecular Epidemiology / Q000592:standards*; D011237:Predictive Value of Tests; D011634:Public Health; D012106:Research