title: A survey of mental health consumers' and family members' involvement in advocacy.
abstract: As the service delivery system is redesigned, the involvement of consumers and family members in mental health policy-making is essential. Advocacy is a way for them to have an impact on policy or decision-making. To determine the extent of their participation in advocacy efforts, consumers and family members were surveyed by other consumers and family members about their involvement in advocacy and mental healthcare reform. Although more family than consumers reported receiving mental healthcare reform information, both groups had difficulty understanding this information. Consumers were more likely to have received information from a mental health professional while family were more likely to have received information from an advocacy group. Lack of economic resources and communication problems were the most often cited barriers to advocacy for consumers. Strategies are suggested for how to increase involvement of consumers and family in advocacy efforts. The limitations of conducting a state-wide study with consumers and family as data collectors is discussed.
authors.affiliation: Missouri Institute of Mental Health, St. Louis 63139, USA.
authors.forename: C J
authors.initials: CJ
authors.lastname: Evans
authors.forename: A C
authors.initials: AC
authors.lastname: McGaha
mesh_terms: D000328:Adult; D003258:Consumer Behavior; D005192:Family Health; D005260:Female; D006306:Health Surveys; D006801:Humans; D008297:Male; D008605:Mental Health Services / Q000600:supply & distribution*; D008923:Missouri; D010344:Patient Advocacy