A new model of advance care planning: observations from people with HIV.
BACKGROUND
Although theoretical concepts from ethics and law have been applied, there is no conceptual model of advance care planning rooted in the perspective of individuals engaged in it.


OBJECTIVE
To develop a conceptual model of advance care planning by examining the perspectives of individuals engaged in it.


METHODS
In this qualitative research, we studied 140 individuals with human immunodeficiency virus (HIV) or acquired immunodeficiency syndrome who were engaged in advance care planning. Respondents' experience with and opinions about advance care planning were noted in interviews that were audiotaped, transcribed, and analyzed.


RESULTS
The primary goal of advance care planning was to prepare for death, which entailed facing death, achieving a sense of control, and strengthening relationships.


CONCLUSIONS
We have developed a conceptual model of advance care planning rooted in the perspectives of individuals engaged in it. The model has implications for theory, research, and practice regarding end-of-life care.
Martin
D K
DK
University of Toronto Joint Centre for Bioethics, Ontario.
Thiel
E C
EC
Singer
P A
PA
D000163:Acquired Immunodeficiency Syndrome / Q000523:psychology* / Q000628:therapy*; D000328:Adult; D032722:Advance Care Planning; D016223:Advance Directives; D001293:Attitude to Death; D015331:Cohort Studies; D005260:Female; D015658:HIV Infections / Q000523:psychology / Q000628:therapy; D006801:Humans; D008297:Male; D008875:Middle Aged; D008960:Models, Psychological; D009864:Ontario; D016134:Organizational Policy; D010347:Patient Care Planning; D036301:Qualitative Research; D011787:Quality of Health Care; D011897:Random Allocation; D012106:Research