Parents of children with chronic health impairments: a new approach to advocacy training.
Consumer advisory coalitions recognize the effectiveness of parents as advocates in obtaining services for their children with special health care needs. As a result, advocacy training programs for parents of children with developmental disabilities have become popular. Parents of children with chronic health conditions, who are not traditionally served through special education, find that they have concerns and needs not addressed by these advocacy training programs. This paper describes a unique program that targets these parents. A distinctive feature of this program is its focus on helping parents develop competency in utilizing communications skills to deal effectively with education and medical systems.
Hixson
D D
DD
Children's National Medical Center, Washington, DC 20010.
Stoff
E
E
White
P H
PH
D000293:Adolescent; D017028:Caregivers / Q000193:education; D002648:Child; D002661:Child Guidance Clinics / Q000458:organization & administration*; D002908:Chronic Disease / Q000191:economics; D004219:District of Columbia; D004519:Education, Special; D004651:Employment; D006744:Hospital Bed Capacity, 100 to 299; D006776:Hospitals, Pediatric / Q000458:organization & administration*; D006801:Humans; D009937:Organizational Objectives; D010290:Parents / Q000193:education*; D010344:Patient Advocacy; D015397:Program Evaluation