Measuring handicap: the London Handicap Scale, a new outcome measure for chronic disease.
OBJECTIVE
To develop a handicap measurement scale in a self completion questionnaire format, with scale weights allowing quantification of handicap at an interval level of measurement.


METHODS
Adaptation of the International Classification of Impairments, Disabilities and handicaps into a practical questionnaire incorporating the dimensions of handicap mobility, occupation, physical independence, social integration, orientation, and economic self sufficiency and scale weights derived from interviews with a general population sample, with the technique of conjoint analysis.


METHODS
Two general practices in different areas of London.


METHODS
240 adults aged 55-74 years randomly selected from the practices, 101 (42%) of whom agreed to be interviewed, and 79 (78%) of whom completed the exercise.


METHODS
Rating of severity of handicap associated with 30 hypothetical health scenarios on a visual analogue scale, from which was derived a matrix of scale weights ("part utilities") relating to different levels of disadvantage on each dimension, with a formula for combining them into an overall handicap score. Severity scores measured directly for five scenarios not used to derive the scale weights were compared with those calculated from the formula to validate the model.


RESULTS
The part utilities obtained conformed with the expected hierarchy for each dimension, confirming the validity of the method. The measured severities and those calculated from the formula for the five scenarios used to validate the model agreed closely (Pearson's r = 0.98, p = 0.0009; Kendall's tau = 1.00, p = 0.007).


CONCLUSIONS
This interval level handicap measurement scale will be useful in assessing both specific therapies and health services, in clinical trials, in analyses of cost effectiveness, and in assessments of quality assurance.
Harwood
R H
RH
Royal Free Hospital School of Medicine, London.
Rogers
A
A
Dickinson
E
E
Ebrahim
S
S
D000203:Activities of Daily Living; D000368:Aged; D001294:Attitude to Health; D002908:Chronic Disease / Q000145:classification*; D006233:Persons with Disabilities / Q000145:classification* / Q000706:statistics & numerical data; D006304:Health Status; D006801:Humans; D008131:London; D008875:Middle Aged; D017063:Outcome Assessment, Health Care / Q000458:organization & administration*; D011788:Quality of Life; D012647:Self-Assessment; D011795:Surveys and Questionnaires