Genetic testing: a conceptual exploration.
This paper attempts to explore a number of conceptual issues surrounding genetic testing. It looks at the meaning of the terms, genetic information and genetic testing in relation to the definition set out by the Advisory Committee on Genetic Testing in the UK, and by the Task Force on Genetic Testing in the USA. It argues that the special arrangements that may be required for the regulation of genetic tests should not be determined by reference to the nature or technology of the test, but by considering those morally relevant features that justify regulation. Failure to do so will lead to the regulation of genetic tests that need not be regulated, and would fail to cover other tests which should be regulated. The paper also argues that there is little in the nature of the properties of gene tests, using DNA or chromosomes, that in itself justifies a special approach.
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D026683:Advisory Committees; D003219:Confidentiality; D030561:Databases, Nucleic Acid; D004992:Ethics, Medical; D030342:Genetic Diseases, Inborn; D030661:Genetic Privacy; D005820:Genetic Testing / Q000331:legislation & jurisprudence / Q000592:standards*; D005826:Genetics, Medical / Q000331:legislation & jurisprudence / Q000592:standards*; D033161:Government Regulation; D006801:Humans; D010344:Patient Advocacy; D011287:Prejudice; D012926:Social Control, Formal; D006113:United Kingdom; D014481:United States