The Resource Mothers Program for Maternal Phenylketonuria.
OBJECTIVE
The purpose of this study was to measure the effectiveness of resource mothers in reducing adverse consequences of maternal phenylketonuria.


METHODS
Nineteen pregnancies in the resource mothers group were compared with 64 pregnancies in phenylketonuric women without resource mothers. Weeks to metabolic control and offspring outcome were measured.


RESULTS
Mean number of weeks to metabolic control was 8.5 (SE = 2.2) in the resource mothers group, as compared with 16.1 (SE = 1.7) in the comparison group. Infants of women in the resource mothers group had larger birth head circumferences and higher developmental quotients.


CONCLUSIONS
The resource mothers program described here improves metabolic control in pregnant women with phenylketonuria.
St James
P S
PS
Psychology Department, University of Massachusetts at Boston, USA.
Shapiro
E
E
Waisbren
S E
SE
D000293:Adolescent; D000328:Adult; D003150:Community Health Workers / Q000193:education*; D005260:Female; D006699:Home Care Services / Q000458:organization & administration*; D006801:Humans; D009035:Mothers / Q000193:education*; D009511:New England; D010353:Patient Education as Topic / Q000458:organization & administration*; D010379:Peer Group; D017042:Phenylketonuria, Maternal / Q000378:metabolism / Q000517:prevention & control*; D011247:Pregnancy; D011256:Pregnancy Outcome; D015397:Program Evaluation; D012944:Social Support; D013997:Time Factors