Perceived needs of families with children who have chronic health conditions.
Parents of children with a wide variety of chronic health conditions (N = 910) were surveyed about their use of health services, out-of-pocket expenses for health care and related items, and ratings of the importance of health and support services. The financial burden on this middle-class, insured sample was substantial, with about half indicating some out-of-pocket expenses for travel, parking fees, drugs and medication, bills after insurance payments, and doctor charges. The commonalities found in parents' reporting of important services needed support the use of a noncategorical approach to program planning and policy development for children with special health care needs.
D002648:Child; D002662:Child Health Services / Q000706:statistics & numerical data*; D002908:Chronic Disease / Q000191:economics / Q000453:epidemiology; D003710:Demography; D006301:Health Services Needs and Demand / Q000706:statistics & numerical data*; D006302:Health Services Research / Q000706:statistics & numerical data*; D006801:Humans; D008404:Massachusetts; D010290:Parents / Q000523:psychology*; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires