title: Privacy ACt 1974; report of a new system of records 09-90-0089. Office of the Assistant Secretary for Planning and Evaluation, Department of Health and Human Services. Notification of new system of records--National Long-Term Care Survey.
abstract: In accordance with 5 U.S.C. 552a(e)(4), wer are issuing public notice of our intent to establish a new system of records: National Long-Term Care Survey, HHS/OS/ASPE, 09-90-0089. We also are proposing to include routine uses of the system in accordance with 5 U.S.C. 552(a)(11). A sample of approximately 50,000 persons, drawn from Medicare administrative records, will be administered a short interview to determine if they have limitations in the personal care and instrumental (shopping, housework, etc.) skills which are necessary for independent living. Those who are limited--approximately 6,000--will be administered a second interview in which data will be obtained on their demographic, health, and economic characteristics, functional status, and utilization and costs of services. As part of this interview, respondents will be asked the names of family and friends who give them care. A sample of 2,000 of these caregivers will be administered an interview to determine the kinds and amount of care they give and their attitudes toward caregiving. The Caregivers Survey will be conducted by the National Opinion Research Center (NORC); all the other interviewing will be conducted by the Bureau of the Census, which will transmit to NORC the names and addresses of caregivers. All data will be used by the Department of Health and Human Services and/or their agents for statistical analysis. The same size has been determined by standard sample design techniques to be the minimum that will allow the required analysis.
mesh_terms: D000203:Activities of Daily Living; D000368:Aged; D003219:Confidentiality / Q000331:legislation & jurisprudence; D006801:Humans; D008134:Long-Term Care / Q000706:statistics & numerical data*; D011996:Records / Q000592:standards*; D011795:Surveys and Questionnaires; D014481:United States