title: Pathways from symptoms to medical care: a descriptive study of symptom development and obstacles to early diagnosis in brain tumour patients.
abstract: BACKGROUND
  The time between experiencing symptoms and treatment in cancer diseases is a time of insecurity and despair. Brain tumour disease is a severe disease with dramatic manifestations and it is important that this time be kept as short as possible.
  
  
  METHODS
  A consecutive sample of 28 patients with malignant gliomas and their spouses were interviewed about symptom development, help-seeking and experiences of medical care. The cumulative development of their symptoms was described and factors acting as obstacles to medical care were identified.
  
  
  RESULTS
  Most spouses witnessed months of global dysfunction preceding the symptom leading to physician consultation. The patient factors 'less alien symptoms', 'personality change' and 'avoidance'; the spouse factors 'spouse's passivity' and 'spouse's successive adaptation'; and the physician factors 'reasonable alternative diagnosis', 'physician's inflexibility' and 'physician's personal values' were identified as obstacles on the pathway to appropriate medical care. The importance of acknowledging the power of the spouse as a provider of substantial information from everyday life facilitating differential diagnosis is stressed.
authors.affiliation: Department of Oncology and Neurosurgery, Umeå University, Sweden.
authors.forename: P
authors.initials: P
authors.lastname: Salander
authors.forename: A T
authors.initials: AT
authors.lastname: Bergenheim
authors.forename: K
authors.initials: K
authors.lastname: Hamberg
authors.forename: R
authors.initials: R
authors.lastname: Henriksson
mesh_terms: D000328:Adult; D000368:Aged; D001932:Brain Neoplasms / Q000175:diagnosis* / Q000523:psychology; D005260:Female; D005910:Glioma / Q000175:diagnosis* / Q000523:psychology; D006297:Health Services Accessibility; D006801:Humans; D008297:Male; D008875:Middle Aged; D011320:Primary Health Care; D011446:Prospective Studies; D012017:Referral and Consultation; D018454:Spouses; D013548:Sweden; D013997:Time Factors