Toddlers with limb deficiency: conceptual basis and initial application of a functional status outcome measure.
OBJECTIVE
To describe the conceptual foundation, development, and initial psychometric analyses of a new outcome measure of functional status in toddlers with limb deficiency.


METHODS
Parents of children with limb deficiency completed self-report measures during a routine medical clinic visit.


METHODS
Outpatient orthopedic pediatric clinic.


METHODS
Twenty parents (mothers) of children (ages 1 to 4 years) with acquired or congenital limb deficiency.


METHODS
The newly developed Child Amputee Prosthetics Project-Functional Status Inventory for Toddlers (CAPP-FSIT).


RESULTS
Estimates of internal consistency reliability of the measure are high, suggesting conceptual congruence among the items. Initial validity studies confirm the CAPP-FSIT differentiates between toddlers with upper limb deficiency and lower limb deficiency in terms of functional activity and prosthesis use. The new measure does not appear to be contaminated by gender or socioeconomic status.


CONCLUSIONS
The CAPP-FSIT is a promising measure for assessing functional abilities in toddlers with limb deficiency.
Pruitt
S D
SD
Department of Psychiatry, University of California, San Diego, School of Medicine, Veterans Affairs San Diego Healthcare System, USA.
Seid
M
M
Varni
J W
JW
Setoguchi
Y
Y
D000203:Activities of Daily Living; D000367:Age Factors; D000674:Amputees / Q000534:rehabilitation*; D001132:Arm; D001186:Artificial Limbs; D002657:Child Development; D002675:Child, Preschool; D006233:Persons with Disabilities / Q000145:classification*; D005121:Extremities / Q000293:injuries*; D005260:Female; D006801:Humans; D007866:Leg; D017880:Limb Deformities, Congenital / Q000503:physiopathology* / Q000534:rehabilitation*; D008297:Male; D009035:Mothers / Q000523:psychology; D011594:Psychometrics; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires / Q000592:standards*