Do you care? A national register for cleft lip and palate patients.
The Cleft Palate Index and, more recently, the Craniofacial Anomalies Register--CARE--have been in operation since 1982. This paper summarizes its development and plans for the future. CARE is a multidisciplinary committee involving all specialties involved in the treatment of this group of patients therefore it should and can be well placed to co-ordinate the cleft data arising from these patients.
Hammond
M
M
Department of Orthodontics, Dudley Group & Hospitals NHS Trust, Corbett Hospital, Stourbridge, West Midlands, UK.
Stassen
L
L
D002971:Cleft Lip / Q000453:epidemiology; D002972:Cleft Palate / Q000453:epidemiology; D003219:Confidentiality; D019465:Craniofacial Abnormalities / Q000453:epidemiology; D003625:Data Collection / Q000379:methods; D019992:Databases as Topic / Q000458:organization & administration; D005544:Forecasting; D006801:Humans; D015994:Incidence; D017063:Outcome Assessment, Health Care; D010348:Patient Care Team; D011159:Population Surveillance; D012042:Registries; D013222:State Medicine; D006113:United Kingdom / Q000453:epidemiology