Discovery of children's carrier status for recessive genetic disease: some ethical issues.
Knowledge of one's carrier status for recessive genetic diseases is useful primarily in making marital and reproductive decisions. These decisions are peculiarly the private domain of the young adults who are dating, mating, and forming new families. The privacy of these decisions may be compromised when parents know the carrier status of their children. Thus, the practice of sharing that information with the parents of fetuses, babies, and minor children ought to be discouraged, out of respect for the autonomy and privacy of these children when they become adults.
Davis
D S
DS
Cleveland-Marshall College of Law, OH 44115, USA. dena.davis@law.csuohio.edu
D000293:Adolescent; D000328:Adult; D002648:Child; D002675:Child, Preschool; D003219:Confidentiality; D003469:Culture; D016208:Databases, Factual; D003657:Decision Making; D004992:Ethics, Medical; D005193:Family Planning Services; D005260:Female; D005808:Genes, Recessive; D006580:Genetic Carrier Screening; D030342:Genetic Diseases, Inborn / Q000235:genetics / Q000517:prevention & control / Q000523:psychology; D005820:Genetic Testing; D006801:Humans; D007223:Infant; D007585:Jews / Q000235:genetics; D008297:Male; D008393:Marriage; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D010817:Physician-Patient Relations; D011296:Prenatal Diagnosis; D012099:Reproductive Techniques; D013661:Tay-Sachs Disease / Q000235:genetics / Q000517:prevention & control; D014342:Truth Disclosure