title: Who should provide genetic education prior to gene testing? Computers and other methods for improving patient understanding.
abstract: As numerous new gene tests are introduced into clinical practice, patients have a growing need for accurate and comprehensive information about the risks and benefits of gene testing. However, in the changing healthcare environment, it is not clear who will provide such information because genetic counselors are scarce and their services are not widely utilized, and primary care providers lack time and expertise in genetics. Interactive computers may help fill the information gap. We review a variety of educational modalities for providing patient education and argue that interactive computers have potential advantages over other educational methods for providing information and promoting informed consent to genetic testing. Finally, some questions for further research are raised.
authors.affiliation: Department of Humanities, Pennsylvania State University College of Medicine, Hershey 17033, USA.
authors.forename: M J
authors.initials: MJ
authors.lastname: Green
authors.forename: N
authors.initials: N
authors.lastname: Fost
mesh_terms: D003194:Computer-Assisted Instruction; D005817:Genetic Counseling; D005820:Genetic Testing; D006801:Humans; D010174:Pamphlets; D010353:Patient Education as Topic; D014743:Videotape Recording