title: Stop experimenting on my baby!
abstract: Having a small sick baby in a neonatal intensive care unit can be an extremely difficult experience for any family. A minority family brings to this setting the additional burden of a concern that racism may affect the care their child receives. While the technology may be overwhelming, the unique rules and an apparent disparity in the enforcement of these rules can suggest discrimination. In some cases, these parental perceptions lead to a charge of experimentation. An increased understanding by health care providers of the cultural differences and life experiences that families bring to stressful situations can improve communication.
authors.affiliation: Division of Newborn Medicine, Mount Sinai School of Medicine, New York, NY 10029, USA.
authors.forename: I R
authors.initials: IR
authors.lastname: Holzman
mesh_terms: D001741:Black or African American / Q000523:psychology*; D001294:Attitude to Health / Q000208:ethnology*; D004992:Ethics, Medical; D006801:Humans; D007231:Infant, Newborn; D015931:Intensive Care, Neonatal; D008913:Minority Groups / Q000523:psychology*; D011368:Professional-Family Relations