Playing for time: adolescent perspectives of lung transplantation for cystic fibrosis.
A single-case study approach was used to provide an in-depth examination of the special events surrounding the decision of a 21-year-old adolescent to undergo lung transplantation for end-stage cystic fibrosis. The central theme "playing for time" characterized the interplay between the disease progression and adolescent development as illustrated by 3 subthemes: (a) a strange balance; (b) playing chicken; and (c) being listed. The adolescent's developmental needs provided the context for the struggle with the competing demands of physiologic and psychologic readiness for the transplant, quality-of-life issues, and a renewed hope for the future. Developmental needs were more important to the adolescent than the opportunity for increased length of survival provided by lung transplantation. Advanced practice nurses are in an excellent position to provide continuity of care for chronic illness management over time and across settings.
Christian
B J
BJ
University of North Carolina, Chapel Hill School of Nursing 27599-7460, USA.
D'Auria
J P
JP
Moore
C B
CB
D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D003550:Cystic Fibrosis / Q000523:psychology* / Q000601:surgery; D003657:Decision Making; D018450:Disease Progression; D006801:Humans; D016040:Lung Transplantation / Q000523:psychology*; D008297:Male; D009722:Nurse Practitioners; D010371:Pediatric Nursing / Q000458:organization & administration; D000297:Psychology, Adolescent; D011788:Quality of Life; D013727:Terminal Care / Q000523:psychology*; D014850:Waiting Lists