Sense making in multiple sclerosis: the information needs of people during an acute exacerbation.
Chronic illness has been described as a major disruption in one's everyday life. Studies have shown that people seek and use information to help them cope with their disease. Using the micro-moment time-line interview technique, this study focused on the information needs of people with multiple sclerosis (MS) who had recently experienced an exacerbation of their disease. The results revealed gaps in people's knowledge about physical symptoms they were experiencing, emotions they felt, and drugs. Various sources of and barriers to obtaining information were identified. The results suggest that health professionals need to be aware of the continuing need for relevant, current, and specific information to help people with MS retain their independence and to empower them to make informed decisions.
Baker
L M
LM
Library and Information Science Program, Wayne State University, Detroit, MI 48202, USA. L.Baker@cms.cc.wayne.edu
D000223:Adaptation, Psychological; D000328:Adult; D006801:Humans; D007255:Information Services; D007407:Interviews as Topic / Q000379:methods; D008875:Middle Aged; D009103:Multiple Sclerosis / Q000523:psychology*; D010353:Patient Education as Topic; D012803:Sick Role