title: [Life situation of patients with ileoanal anastomosis].
abstract: Ileal pouch-anal anastomosis is an alternative to ileostomy for patients with ulcerative colitis. Results of a questionnaire survey answered by 155 patients organised in a support group are presented. Consequences of the operation were mainly faecal incontinence, experienced by half of the group in the daytime, and frequent defaecations (5-7 per day, 1-2 per night). One half of the patients used medication every day to decrease the number of defaecations. 64% had changed their diet, while social and physical activities were reduced for 43% of the patients. Changes in lifestyle after the operation lead to increased expenses for 70% of the group. Women were more often incontinent than men and experienced it as a serious problem, and more women than men had changed their dietary habits. The quality of sleep was inferior to that of the preoperative period for 47% of the patients. 50% felt restricted in daily life activities due to frequent defaecations. These patients are living with a concealed disability. In spite of this, their assessments of self-esteem, health and quality of life were mainly positive.
authors.affiliation: Avdeling for gynekologisk onkologi, Det Norske Radiumhospital, Oslo.
authors.forename: A
authors.initials: A
authors.lastname: Larsen
authors.forename: K H
authors.initials: KH
authors.lastname: Hole
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D005242:Fecal Incontinence / Q000209:etiology / Q000523:psychology; D005247:Feeding Behavior; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D016737:Proctocolectomy, Restorative / Q000009:adverse effects / Q000523:psychology*; D011788:Quality of Life; D012649:Self Concept; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires
vernacular_title: Livssituasjonen for pasienter operert med ileoanal anastomose.