Personal time: the patient's experience.
When a life-threatening or chronic disease is diagnosed, patients may find that their sense of time, the passage of days, and their view of the future are altered. Most of the time, people live in a sense of linear time, or kronos. When illness strikes, they may begin to spend more time in kairos, a sense of soul-satisfying time, such as the feeling one gets when walking on the seashore with a grandchild, working in the garden, or talking with friends over good food and wine. This article comments on two patients, one who explores kairos through a diary that documents her positive attitude toward coping with multiple sclerosis, and one, a young artist with Hodgkin disease, who explores his condition through 96 paintings of his experience of the disease. Rather than "the devouring tyrant of linear time," life can be seen in a circular fashion, the eternal braid of Hofstadter. Patients begin to see life more in terms of cycles of daily events, routines, and the change of seasons. Illness brings one "close to the bone" of the soul's needs, with a reappraisal of the journey of life as a continuous line, to life spread out on a landscape that includes the past and the future.
Murray
T J
TJ
Dalhousie Medical School, Halifax, Nova Scotia, Canada. jock.murray@dal.ca
D000739:Anecdotes as Topic; D006689:Hodgkin Disease / Q000523:psychology*; D006801:Humans; D009103:Multiple Sclerosis / Q000523:psychology*; D010817:Physician-Patient Relations; D013995:Time