The power to choose: supports for families caring for individuals with developmental disabilities.
In an exploratory study of family support services in Massachusetts, three focus groups were convened to obtain the perspectives of parents caring for individuals with developmental disabilities and living at home. This article summarizes key themes that emerged from the group discussions: effects of family supports on family life, flexibility of supports, barriers, unmet needs, and recommendations for change. Social workers and health care professionals can enhance the well-being of people with developmental disabilities and their families by addressing the needs of the entire family, facilitating family choice and control of supports, and helping families navigate the complex service system.
Freedman
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School of Social Work, Boston University, MA 02215, USA. freedman@bu.edu
Boyer
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D000293:Adolescent; D000328:Adult; D017028:Caregivers / Q000523:psychology*; D019090:Case Management / Q000458:organization & administration; D002648:Child; D002675:Child, Preschool; D002755:Choice Behavior; D002658:Developmental Disabilities / Q000451:nursing*; D005260:Female; D017144:Focus Groups; D006801:Humans; D007389:Internal-External Control; D008297:Male; D008404:Massachusetts; D008875:Middle Aged; D020380:Needs Assessment; D010290:Parents / Q000523:psychology*; D011209:Power, Psychological; D012144:Respite Care / Q000458:organization & administration; D012944:Social Support; D012947:Social Work / Q000458:organization & administration*