title: Continuity and change in the use of residential services by adults with intellectual disability: the Aberdeen cohort at mid-life.
abstract: The present paper reports a follow-up study of a representative cohort of people with intellectual disability, now in middle age, who entered adult services on leaving school in the late 1960s, and whose adult years have coincided with a period of radical policy change and considerable service expansion. The present authors focus on the changes which have taken place in their use of residential services over this period. Firstly, the situation in early adulthood when they were last studied is examined. At this time, 60% of the cohort were still living at home, almost all with both parents. The remaining 40% were in institutions, mainly long-stay mental handicap hospitals. Out-of-home placement is associated with gender (maleness), challenging behaviour, and the absence of one or both parents. The present authors compare this with the situation 20 years later. The most significant change in this time is the expansion of the community sector, accounting for about half of the surviving cohort, with numbers still at home or in hospital correspondingly reduced. Almost half of the cohort had experienced little or no change in residential situation. On average, they were less intellectually and socially able than those who had moved into community provision.
authors.affiliation: Department of Psychiatry, University of Dundee, UK. d.r.may@dundee.ac.uk
authors.forename: D
authors.initials: D
authors.lastname: May
authors.forename: J
authors.initials: J
authors.lastname: Hogg
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D015331:Cohort Studies; D003156:Community Mental Health Services / Q000706:statistics & numerical data* / Q000639:trends*; D003688:Deinstitutionalization / Q000706:statistics & numerical data / Q000639:trends; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D008607:Intellectual Disability / Q000523:psychology*; D007360:Intelligence; D008297:Male; D019989:Persons with Intellectual Disabilities / Q000706:statistics & numerical data*; D012111:Residence Characteristics / Q000706:statistics & numerical data*; D012606:Scotland; D012720:Severity of Illness Index