Context, confidentiality, and consent in tailored health communications: a cautionary note.
This article highlights key contextual factors that emerge when the evolution of tailored health communications is viewed against the backdrop of dynamic changes in the nation's health care system--including the shift from fee-for-service medicine to managed care and the proliferation of direct-to-consumer and tailored marketing strategies in the pharmaceutical industry. It focuses on contextual variables with potential to significantly mediate the impact of personally tailored health advice--including those related to confidentiality, privacy, and informed consent and to the perceived aims, intents, and sources of tailored health messages. To protect the future of tailored health messages, more research attention must be given to defining these contextual factors and understanding the roles that they play and the ways in which they can be controlled to assure the best outcomes. Such research could point the way towards a set of empirical and ethical "best practices" based on a scientific understanding of how to maximize the benefits, and minimize the potential harms, of the widescale use of tailored health communications.
Orleans
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Robert Wood Johnson Foundation, Princeton, NJ 08543, USA.
D003219:Confidentiality; D006266:Health Education / Q000331:legislation & jurisprudence* / Q000379:methods; D006293:Health Promotion / Q000331:legislation & jurisprudence; D006801:Humans; D007255:Information Services / Q000331:legislation & jurisprudence*; D007258:Informed Consent; D011786:Quality Control; D014481:United States; D014584:User-Computer Interface