title: Patient autonomy during rehabilitation: the experiences of stroke patients in nursing homes.
abstract: This article describes the results of a grounded theory study among stroke patients (N=17, aged 50-85) in rehabilitation wards in nursing homes. Patient autonomy (dimensions: self-determination, independence and self-care) increases during rehabilitation due to patient factors (conditions and strategies of patient) and environmental factors (nursing home and strategies of health professionals and family). During rehabilitation patients are in a state of transition regarding autonomy: patients need support to enhance autonomy, gradually regain autonomy, and thereby need less support. Although facilitating environmental factors were discovered, patients also experienced constraining factors regarding patient autonomy. Health professionals should give more attention to self-determination and independence; the nursing home should offer stroke patients more opportunities to do familiar activities autonomously.
authors.affiliation: Institute for Bioethics, P.O. Box 616, 6200 MD, Maastricht, The Netherlands. i.proot@ige.unimaas.nl
authors.forename: I M
authors.initials: IM
authors.lastname: Proot
authors.forename: H H
authors.initials: HH
authors.lastname: Abu-Saad
authors.forename: W P
authors.initials: WP
authors.lastname: de Esch-Janssen
authors.forename: H F
authors.initials: HF
authors.lastname: Crebolder
authors.forename: R H
authors.initials: RH
authors.lastname: ter Meulen
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009426:Netherlands; D009732:Nursing Care; D009735:Nursing Homes; D012648:Self Care; D020521:Stroke / Q000451:nursing*; D000071939:Stroke Rehabilitation; D011795:Surveys and Questionnaires