title: Update of the health care management needs of infants with sickle cell disease.
abstract: This article describes the characteristics, clinical manifestations, and health care management of infants with sickle cell disease. Also discussed are parent education issues and stressors related to coping with the health care management needs of infants with sickle cell disease. Special emphasis is given to literature focused on the concept of anticipatory grief often experienced by parents of chronically ill children.
authors.affiliation: Jewish Hospital College of Nursing and Allied Health, Washington University Medical Center, St Louis, Mo. 63110-1090, USA.
authors.forename: V L
authors.initials: VL
authors.lastname: Hendricks-Ferguson
authors.forename: M
authors.initials: M
authors.lastname: Nelson
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D000755:Anemia, Sickle Cell / Q000150:complications / Q000175:diagnosis / Q000523:psychology / Q000628:therapy*; D006117:Grief; D006801:Humans; D015994:Incidence; D007223:Infant; D020380:Needs Assessment; D010290:Parents / Q000193:education* / Q000523:psychology*; D010371:Pediatric Nursing / Q000379:methods*