Crigler-Najjar syndrome, 1952-2000: learning from parents and patients about a very rare disease and using the internet to recruit patients for studies.
Lucey
J F
JF
Department of Pediatrics, University of Vermont College of Medicine, Burlington, VT 05405, USA. lucey@salus.med.uvm.edu
Suresh
G K
GK
Kappas
A
A
D002648:Child; D003414:Crigler-Najjar Syndrome; D006801:Humans; D020407:Internet