title: Crigler-Najjar syndrome, 1952-2000: learning from parents and patients about a very rare disease and using the internet to recruit patients for studies.
authors.affiliation: Department of Pediatrics, University of Vermont College of Medicine, Burlington, VT 05405, USA. lucey@salus.med.uvm.edu
authors.forename: J F
authors.initials: JF
authors.lastname: Lucey
authors.forename: G K
authors.initials: GK
authors.lastname: Suresh
authors.forename: A
authors.initials: A
authors.lastname: Kappas
mesh_terms: D002648:Child; D003414:Crigler-Najjar Syndrome; D006801:Humans; D020407:Internet