title: Quality of life issues in recurrent respiratory papillomatosis.
abstract: Twenty-six adult patients attending the Royal National Throat, Nose, and Ear Hospital with Recurrent Respiratory Papillomatosis completed two postal questionnaires. One was the generic Short Form-36 (SF-36) quality of life instrument. Severely affected patients had lower scores in all dimensions of this instrument, with large differences from normal controls in dimensions of pain, physical limitation, and energy/vitality. The second questionnaire was newly devised, and designed to ask about a wide variety of larynx-specific symptoms. Answers by patients were compared with those of normal controls, and symptoms selected as significantly more likely to be reported by patients were studied further. Correlation was seen with clinical parameters, and questions likely to be responsive to clinical change in disease burden were identified.
authors.affiliation: The Royal National Throat, Nose, and Ear Hospital, London, UK.
authors.forename: D S
authors.initials: DS
authors.lastname: Hill
authors.forename: S
authors.initials: S
authors.lastname: Akhtar
authors.forename: A
authors.initials: A
authors.lastname: Corroll
authors.forename: C B
authors.initials: CB
authors.lastname: Croft
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D002675:Child, Preschool; D005260:Female; D006801:Humans; D007822:Laryngeal Neoplasms / Q000150:complications / Q000523:psychology*; D008297:Male; D008875:Middle Aged; D009364:Neoplasm Recurrence, Local; D010212:Papilloma / Q000150:complications / Q000523:psychology*; D011788:Quality of Life; D012189:Retrospective Studies; D011795:Surveys and Questionnaires; D014832:Voice Disorders / Q000209:etiology / Q000523:psychology; D014833:Voice Quality