title: Patient held clinical information for people with psychotic illnesses.
abstract: BACKGROUND
  It is important to seek cost-effective methods of improving the care and outcome of those with serious mental illnesses. Patient-held records, where the person with the illness holds all or some personal information relating to the course and care of their illness, are now the norm in some clinical settings. Their value for those with serious mental illnesses is unknown.
  
  
  OBJECTIVE
  To evaluate the effects of personalised and accessible patient-held clinical information for people with a diagnosis of psychotic illness.
  
  
  METHODS
  Electronic searches of AMED (1980-1998), Biological Abstracts (1985-1998), British Nursing Index (1994-1998), CAB (1973-1999), CINAHL (1982-1999), The Cochrane Controlled Trials Register (Issue 1, 1999), EMBASE (1980-1999), HEALTHSTAR (1990-1999), HMIC (King's Fund Database 1979-1998 & HELMIS 1984-1998), MEDLINE (1966-1999), PsycLIT (1887-1999), Royal College of Nursing Database (1985-1996), SIGLE (1990-1998), Sociological Abstracts (1963-1998) and the Internet (http://www. controlled-trials.com/) were undertaken. This was supplemented by personal contact with the Executive Board of the European Network for Mental Health Service Evaluation.
  
  
  METHODS
  The inclusion criteria were that studies should: i. be randomised or quasi-randomised trials; ii. have involved adults with a diagnosis of a psychotic illness; and iii. compare any personalised and accessible clinical information held by the patient beyond standard care to standard information routinely held such as appointment cards and generic information on diagnosis, treatment or services available.
  
  
  METHODS
  Study selection and data extraction was reliability undertaken. Analysis was not possible.
  
  
  RESULTS
  Not one study met the inclusion criteria for the review. One study (Stafford 1997) was found on the use of client held records for people with long term mental illness but the participants had not been randomised. Two important randomised studies (Lester 1999, Papageorgiou 1999) are ongoing.
  
  
  CONCLUSIONS
  There is a gap in the evidence regarding patient-held, personalised, accessible clinical information for people with psychotic illnesses. It cannot be assumed that patient-held information is beneficial or cost-effective without evidence from well planned, conducted and reported randomised trials.
authors.affiliation: Community Psychiatry, Institute of Psychiatry, De Crespigny Park, Denmark Hill, London, UK, SE5 8AF. spjurch@iop.kcl.ac.uk
authors.forename: C
authors.initials: C
authors.lastname: Henderson
authors.forename: R
authors.initials: R
authors.lastname: Laugharne
mesh_terms: D000328:Adult; D016223:Advance Directives; D006801:Humans; D008499:Medical Records; D010358:Patient Participation; D011618:Psychotic Disorders / Q000628:therapy*